Dataset Information

A new measure of caregiver burden in Alzheimer's disease: the caregiver-perceived burden questionnaire.

ABSTRACT:

Objective

To validate the Caregiver-Perceived Burden Questionnaire (CPBQ) and report its psychometric properties.

Methods

The CPBQ was administered to caregivers of patients with moderate-to-severe AD in a double-blind randomized trial comparing extended-release memantine to placebo (n = 676). Measurement properties were analyzed using factor analysis, classical test theory, and Rasch analysis.

Results

Two subscales were identified: the Caregivers' Assessment of the Patient (CAP) and the Caregivers' Assessment of Themselves (CAT). The reliability was .89 (CAP) and .83 (CAT). The CAP scores were significantly correlated (r > .3) with scores from the Severe Impairment Battery (SIB) and the Neuropsychiatric Inventory (NPI). The CAT scores were significantly correlated with NPI scores. The CAT discriminated among patients by clinician-rated severity and significantly differentiated between responders and nonresponders.

Conclusion

The CPBQ appears to be a reliable, valid, and responsive measure that enables linking caregiver's perceptions about burden and patient function in patients with moderate-to-severe AD.

SUBMITTER: Erder MH

PROVIDER: S-EPMC10697400 | biostudies-literature | 2012 Nov

REPOSITORIES: biostudies-literature

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Publications

A new measure of caregiver burden in Alzheimer's disease: the caregiver-perceived burden questionnaire.

Erder M Haim MH Wilcox Teresa K TK Chen Wen-Hung WH O'Quinn Sean S Setyawan Juliana J Saxton Judith J

American journal of Alzheimer's disease and other dementias 20120816 7

<h4>Objective</h4>To validate the Caregiver-Perceived Burden Questionnaire (CPBQ) and report its psychometric properties.<h4>Methods</h4>The CPBQ was administered to caregivers of patients with moderate-to-severe AD in a double-blind randomized trial comparing extended-release memantine to placebo (n = 676). Measurement properties were analyzed using factor analysis, classical test theory, and Rasch analysis.<h4>Results</h4>Two subscales were identified: the Caregivers' Assessment of the Patient ...[more]

PMID: 22904030

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Project description:BACKGROUND: A new caregiver burden questionnaire for heart failure (CBQ-HF v1.0) was developed based on previously conducted qualitative interviews with HF caregivers and with input from HF clinical experts. Version 1.0 of the CBQ-HF included 41 items measuring the burden associated with caregiving in the following domains: physical, emotional/psychological, social, and impact on caregiver's life. Following initial development, the next stage was to evaluate caregivers' understanding of the questionnaire items and their conceptual relevance. METHODS: To evaluate the face and content validity of the new questionnaire, cognitive interviews were conducted with caregivers of heart failure patients. The cognitive interviews included a "think aloud" exercise as the patient completed the CBQ-HF, followed by more specific probing questions to better understand caregivers' understanding, interpretation and the relevance of the instructions, items, response scales and recall period. RESULTS: Eighteen caregivers of heart failure patients were recruited. The mean age of the caregivers was 50 years (SD?=?10.2). Eighty-three percent of caregivers were female and most commonly the patient was either a spouse (44%) or a parent (28%). Among the patients 55% were NYHA Class 2 and 45% were NYHA Class 3 or 4. The caregiver cognitive interviews demonstrated that the CBQ-HF was well understood, relevant and consistently interpreted. From the initial 41 item questionnaire, fifteen items were deleted due to conceptual overlap and/or item redundancy. The final 26-item CBQ-HF (v3.0) uses a 5-point Likert severity scale, assessing 4 domains of physical, emotional/psychological, social and lifestyle burdens using a 4-week recall period. CONCLUSIONS: The CBQ-HF (v3.0) is a comprehensive and relevant measure of subjective caregiver burden with strong content validity. This study has established that the CBQ-HF (v3.0) has strong face and content validity and should be valuable as an outcomes measure to help understand and monitor the relationship between patient heart failure severity and caregiver burden. A Translatability AssessmentSM of the measure has since been performed confirming the cultural appropriateness of the measure and psychometric validation is planned for the future to further explore the reliability, and validity of the new questionnaire in a larger caregiver sample.

Dataset Information

A new measure of caregiver burden in Alzheimer's disease: the caregiver-perceived burden questionnaire.

Objective

Methods

Results

Conclusion

Publications

A new measure of caregiver burden in Alzheimer's disease: the caregiver-perceived burden questionnaire.

Similar Datasets

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