Dataset Information

Improving end-of-life care for people with dementia: a mixed-methods study.

ABSTRACT:

Background

Improving palliative and end-of-life care for people with dementia is a growing priority globally. This study aimed to integrate multiple perspectives on end-of-life care for people with dementia and carers, to identify clinically relevant areas for improvement.

Methods

The mixed-methods study involved surveys, interviews, and workshops with two participant groups: healthcare professionals and carers (individuals who provided care and support to a family member or friend). Healthcare professionals were invited to complete an online adapted version of the Australian Commission on Safety and Quality in Health Care, End-of-Life Care Toolkit: Clinician Survey Questions. Carers completed a hard copy or online adapted version of the Views of Informal Carers-Evaluation of Services (Short form) (VOICES-SF) questionnaire. Interview schedules were semi-structured, and workshops followed a co-design format. Findings were integrated narratively using a weaving approach.

Results

Five areas in which we can improve care for people with dementia at the end of life, were identified: 1) Timely recognition of end of life; 2) Conversations about palliative care and end of life; 3) Information and support for people with dementia and carers; 4) Person-and-carer-centred care; 5) Accessing quality, coordinated care.

Conclusions

There are multiple areas where we can improve the quality of end-of-life care people with dementia receive. The findings demonstrate that the heterogeneous and challenging experiences of living with and caring for people with dementia necessitate a multidisciplinary, multifaceted approach to end-of-life care. The identified solutions, including care coordination, can guide local development of co-designed models of end-of-life care for people with dementia.

SUBMITTER: Triandafilidis Z

PROVIDER: S-EPMC10825990 | biostudies-literature | 2024 Jan

REPOSITORIES: biostudies-literature

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Publications

Improving end-of-life care for people with dementia: a mixed-methods study.

Triandafilidis Zoi Z Carr Sally S Davis Daneill D Jeong Sarah Yeun-Sim SY Hensby Jacinta J Wong Daniel D Attia John J Goodwin Nicholas N

BMC palliative care 20240130 1

<h4>Background</h4>Improving palliative and end-of-life care for people with dementia is a growing priority globally. This study aimed to integrate multiple perspectives on end-of-life care for people with dementia and carers, to identify clinically relevant areas for improvement.<h4>Methods</h4>The mixed-methods study involved surveys, interviews, and workshops with two participant groups: healthcare professionals and carers (individuals who provided care and support to a family member or frien ...[more]

PMID: 38291401

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Dataset Information

Improving end-of-life care for people with dementia: a mixed-methods study.

Background

Methods

Results

Conclusions

Publications

Improving end-of-life care for people with dementia: a mixed-methods study.

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