Dataset Information

Improving Hawaiian and Filipino involvement in clinical research opportunities: qualitative findings from Hawai'i.

ABSTRACT: Investigate the barriers to participation in medical research that involves Asian and Pacific Islander (API) populations in Hawai'i.Fifty people (27 Filipinos, 23 Hawaiian/Pacific Islanders) in five different communities on Oahu.Nine focus groups with an ethnically matched moderator were held to explore people's feelings, problems, and recommendations regarding medical research. Sessions were audiotaped, transcribed, and qualitatively analyzed with the constant comparison method.Only 12% of study participants said that they absolutely would not participate in a clinical study. Most agreed that research is vital. Filipino participants were more optimistic about the safety and value of joining in medical research. Hawaiian groups were more hesitant and fearful. Reasons for nonparticipation included negative feelings about the purpose and intent of clinical trials and language and cultural barriers. Suggestions on how to encourage API populations to participate in research investigations included improving peoples' understanding of the benefits to family and community. Hawaiian and Filipino groups differed only slightly in their assessments of the type of research needed in their communities.Recruitment campaigns must improve people's awareness of the process of informed consent, research safeguards, and benefits to family and community. Attention should focus on K-12 health education to use members of the younger generations to access and educate elders, involving persons with medical research experience as a recruitment resource, returning results to study participants, and increasing the number of healthcare professionals and researchers that are culturally and linguistically matched to the community.

SUBMITTER: Gollin LX

PROVIDER: S-EPMC1473039 | biostudies-literature | 2005

REPOSITORIES: biostudies-literature

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Improving Hawaiian and Filipino involvement in clinical research opportunities: qualitative findings from Hawai'i.

Gollin Lisa X LX Harrigan Rosanne C RC Calderón José L JL Perez John J Easa David D

Ethnicity & disease 20050101 4 Suppl 5

<h4>Objective</h4>Investigate the barriers to participation in medical research that involves Asian and Pacific Islander (API) populations in Hawai'i.<h4>Participants</h4>Fifty people (27 Filipinos, 23 Hawaiian/Pacific Islanders) in five different communities on Oahu.<h4>Design</h4>Nine focus groups with an ethnically matched moderator were held to explore people's feelings, problems, and recommendations regarding medical research. Sessions were audiotaped, transcribed, and qualitatively analyze ...[more]

PMID: 16312944

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Project description:BackgroundKnowledge produced through applied health research is often of a form not readily accessible to or actionable by policymakers and practitioners, which hinders its implementation. Our aim was to identify research activities that can support the production of knowledge tailored to inform policy and practice. To do this, we studied an operational research approach to improving the production of applied health research findings.MethodsA 2-year qualitative study was conducted of the operational research contribution to a multidisciplinary applied health research project that was successful in rapidly informing national policy. Semi-structured interviews (n = 20) were conducted with all members of the project's research team and advisory group (patient and health professional representatives and academics). These were augmented by participant (> 150 h) and non-participant (> 15 h) observations focusing on the process and experience of attempting to support knowledge production. Data were analysed thematically using QSR NVivo software.ResultsOperational research performed a knowledge mediation role shaped by a problem-focused approach and an intent to perform those tasks necessary to producing readily implementable knowledge but outwith the remit of other disciplinary strands of the project. Three characteristics of the role were found to support this: engaging and incorporating different perspectives to improve services by capturing a range of health professional and patient views alongside quantitative and qualitative research evidence; rendering data meaningful by creating and presenting evidence in forms that are accessible to and engage different audiences, enabling them to make sense of it for practical use; and maintaining perceived objectivity and rigour by establishing credibility, perceived neutrality and confidence in the robustness of the research in order to unite diverse professionals in thinking creatively about system-wide service improvement.ConclusionsOur study contributes useful empirical insights about knowledge mediation activities within multidisciplinary applied health research projects that support the generation of accessible, practice-relevant and actionable knowledge. Incorporating such activities, or a dedicated role, for mediating knowledge production within such projects could help to enhance the uptake of research findings into routine healthcare and warrants further consideration.

Project description:At present, 21 game species have been successfully established in Hawai'i for the purpose of recreational and subsistence hunting. However, it is unknown how these management efforts have affected hunting and recreation trends in Hawai'i and how the patterns may parallel national data. Consequently, managers and biologists in Hawai'i have little reliable harvest and hunting participation information on which to base current and future management goals. This study provides the first ever analysis of public hunting data in the state of Hawai'i, and is one of only a handful nationally to investigate long-term hunting dynamics in the United States. Our goal was to understand historical hunting trends in the state of Hawai'i in order to provide baseline information to assist in current and future management efforts. Based upon this goal, our objectives were to investigate the influence that time, location, and species have had on both game harvest and hunter participation from 1946 to 2008 across the inhabited islands of Hawai'i. We used 62 years of data from Pittman-Robertson reports to evaluate temporal trends in game harvest and hunter participation for all species, individual species, and taxonomic groups (mammals and birds) at both state and island levels. Since 1946, trends in game harvest and hunter participation in Hawai'i have varied widely by island and species, suggesting that game management may be most effective when approached at the island or species level. Across the state the overall harvest has declined, with only a handful of species being harvested in greater numbers over time on several islands. However, our findings do highlight inconsistencies and potential biases in harvest collection data that are critical for science-based management. In particular, because every game species in Hawai'i has been introduced, there is a critical need to improve harvest data collection and couple it with monitoring data in order to provide management and policy recommendations and develop better conservation planning guidelines.

Dataset Information

Improving Hawaiian and Filipino involvement in clinical research opportunities: qualitative findings from Hawai'i.

Publications

Improving Hawaiian and Filipino involvement in clinical research opportunities: qualitative findings from Hawai'i.

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