Dataset Information

Patients' consent preferences for research uses of information in electronic medical records: interview and survey data.

ABSTRACT: OBJECTIVES:To assess patients' preferred method of consent for the use of information from electronic medical records for research. DESIGN:Interviews and a structured survey of patients in practices with electronic medical records. SETTING:Family practices in southern Ontario, Canada. PARTICIPANTS:123 patients: 17 were interviewed and 106 completed a survey. MAIN OUTCOME MEASURES:Patients' opinions and concerns on use of information from their medical records for research and their preferences for method of consent. RESULTS:Most interviewees were willing to allow the use of their information for research purposes, although the majority preferred that consent was sought first. The seeking of consent was considered an important element of respect for the individual. Most interviewees made little distinction between identifiable and anonymised data. Research sponsored by private insurance firms generated the greatest concern, and research sponsored by foundation the least. Sponsorship by drug companies evoked negative responses during interview and positive responses in the survey. CONCLUSIONS:Patients are willing to allow information from their medical records to be used for research, but most prefer to be asked for consent either verbally or in writing.

SUBMITTER: Willison DJ

PROVIDER: S-EPMC148897 | biostudies-literature | 2003 Feb

REPOSITORIES: biostudies-literature

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Patients' consent preferences for research uses of information in electronic medical records: interview and survey data.

Willison Donald J DJ Keshavjee Karim K Nair Kalpana K Goldsmith Charlie C Holbrook Anne M AM

BMJ (Clinical research ed.) 20030201 7385

<h4>Objectives</h4>To assess patients' preferred method of consent for the use of information from electronic medical records for research.<h4>Design</h4>Interviews and a structured survey of patients in practices with electronic medical records.<h4>Setting</h4>Family practices in southern Ontario, Canada.<h4>Participants</h4>123 patients: 17 were interviewed and 106 completed a survey.<h4>Main outcome measures</h4>Patients' opinions and concerns on use of information from their medical records ...[more]

PMID: 12586673

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Project description:BackgroundAs a result of demographic changes, physicians are required to deliver needed services with limited resources. Research suggests that tablet PCs with access to patient data may streamline clinical workflow. A recent study found tablets with mobile electronic medical records (EMRs) can facilitate data retrieval and produce time savings across the clinical routine within hospital settings. However, the reasons for these time savings, including details on how tablets were being used, remain unclear. The same applies to physicians' perceptions of this tool within an inpatient setting.ObjectiveThis study examined physicians' perception of tablets with EMRs in an inpatient setting. The rationale was to identify both subjective and objective factors that impacted the successful implementation and use of tablets running an EMR.MethodsWe developed a 57-item survey questionnaire designed to examine users' perception of and attitude toward tablets, which was administered to 14 participating physicians following 7 weeks of tablet use. Five participants volunteered to participate in a second study that investigated physicians' patterns of tablet use within the EMR environment by digitally tracking and storing usage behavior. Statistical analyses of questionnaire results included mean values with their bootstrapped 95% confidence intervals and multivariate analysis of variance to identify predictors of tablet use.ResultsPhysicians reported high degrees of satisfaction with the tablets. There was a general consensus among physicians that tablet use streamlined clinical workflow through optimized data retrieval (rated 0.69, 0.23-1.15 points better than control) and improved communication with patients and other physicians (rated 0.85, 0.54-1.15 and 0.77, 0.38-1.15 points better than control, respectively). Age (F3,11=3.54, P=.04), occupational group (F1,11=7.17, P=.04), and attitude toward novel technologies (F1,11=10.54, P=.02) predicted physicians' satisfaction with the devices and their motivation regarding their further use. Tracking data yielded that only a few of the available functions were used frequently.ConclusionsAlthough tablet PCs were consistently perceived as beneficial, several factors contributed to the fact that their full potential was not fully exploited. Training in functionality and providing a reliable infrastructure might foster successful tablet implementation.

Dataset Information

Patients' consent preferences for research uses of information in electronic medical records: interview and survey data.

Publications

Patients' consent preferences for research uses of information in electronic medical records: interview and survey data.

Similar Datasets

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