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Donor designation: racial and ethnic differences in US nondesignators' preferred methods for disclosing intent to donate organs.

ABSTRACT: Little is known about racial/ethnic differences in preferred methods of disclosing deceased organ donation intentions among persons not previously designating their organ donation preferences publicly or the association of medical mistrust with preferences. We surveyed 307 United States (US) adults who had not yet designated their donation intentions via drivers' licenses or organ donor cards (nondesignators) to identify their preferred disclosure methods (personal discussions with family, physicians, or religious representatives or public registration via mail/telephone/computer, workplace, place of religious worship, or grocery store/bank/post office) and to assess the association of mistrust with preferences. In multivariable models, we assessed racial/ethnic differences in preferences and the influence of medical mistrust on preferences. Nondesignators most preferred discussions with physicians (65%) or family members (63%). After adjustment, African Americans (AAs) were more likely than Whites to prefer discussion with religious representatives. In contrast, AAs and Hispanics were less likely than Whites to prefer registration at a workplace or through mail/telephone/computer. Medical mistrust was common and associated with less willingness to disclose via several methods. Encouraging donation intention disclosure via discussions with physicians, family, and religious representatives and addressing medical mistrust could enhance strategies to improve nondesignators' donation rates.

SUBMITTER: Purnell TS

PROVIDER: S-EPMC3168712 | biostudies-literature | 2011 Oct

REPOSITORIES: biostudies-literature

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Donor designation: racial and ethnic differences in US nondesignators' preferred methods for disclosing intent to donate organs.

Purnell Tanjala S TS Powe Neil R NR Troll Misty U MU Wang Nae-Yuh NY LaVeist Thomas A TA Boulware L Ebony LE

Transplant international : official journal of the European Society for Organ Transplantation 20110721 10

Little is known about racial/ethnic differences in preferred methods of disclosing deceased organ donation intentions among persons not previously designating their organ donation preferences publicly or the association of medical mistrust with preferences. We surveyed 307 United States (US) adults who had not yet designated their donation intentions via drivers' licenses or organ donor cards (nondesignators) to identify their preferred disclosure methods (personal discussions with family, physi ...[more]

PMID: 21777299

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Project description:The gap between the supply of organs available for transplantation and demand is growing, especially among ethnic groups.To evaluate the effect of a video designed to address concerns of ethnic groups about organ donation.Cluster randomized, controlled trial. Randomization was performed by using a random-number table with centralized allocation concealment. Participants and investigators assessing outcomes were not blinded to group assignment. (ClinicalTrials.gov registration number: NCT00870506)Twelve branches of the Ohio Bureau of Motor Vehicles in northeastern Ohio.952 participants aged 15 to 66 years.Video (intervention; n = 443) or usual Bureau of Motor Vehicles license practices (control; n = 509).The primary outcome was the proportion of participants who provided consent for organ donation on a newly acquired driver's license, learner's permit, or state identification card. Secondary outcomes included willingness to make a living kidney donation to a family member in need and personal beliefs about donation.More participants who viewed the video consented to donate organs than control participants (84% vs. 72%; difference, 12 percentage points [95% CI, 6 to 17 percentage points]). The video was effective among black participants (76% vs. 54%; difference, 22 percentage points [CI, 9 to 35 percentage points]) and white participants (88% vs. 77%; difference, 11 percentage points [CI, 5 to 15 percentage points]). At the end of the trial, fewer intervention than control participants reported having insufficient information about organ donation (34% vs. 44%; difference, -10 percentage points [CI, -16 to -4 percentage points]), wanting to be buried with all of their organs (14% vs. 25%; difference, -11 percentage points [CI, -16 to -6 percentage points]), and having conflicts with organ donation (7% vs. 11%; difference, -4 percentage points [CI, -8 to -2 percentage points]).How the observed increases in consent to donate organs might translate into a greater organ supply in the region is unclear.Exposure to a brief video addressing concerns that ethnic groups have about organ donation just before obtaining a license, permit, or identification card increased consent to donate organs among white and black participants.National Institutes of Health and the Robert Wood Johnson Foundation.

Dataset Information

Donor designation: racial and ethnic differences in US nondesignators' preferred methods for disclosing intent to donate organs.

Publications

Donor designation: racial and ethnic differences in US nondesignators' preferred methods for disclosing intent to donate organs.

Similar Datasets

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