Ontology highlight
ABSTRACT:
SUBMITTER: McGuire AL
PROVIDER: S-EPMC3203320 | biostudies-literature | 2011 Nov
REPOSITORIES: biostudies-literature
McGuire Amy L AL Oliver Jill M JM Slashinski Melody J MJ Graves Jennifer L JL Wang Tao T Kelly P Adam PA Fisher William W Lau Ching C CC Goss John J Okcu Mehmet M Treadwell-Deering Diane D Goldman Alica M AM Noebels Jeffrey L JL Hilsenbeck Susan G SG
Genetics in medicine : official journal of the American College of Medical Genetics 20111101 11
<h4>Purpose</h4>Despite growing concerns toward maintaining participants' privacy, individual investigators collecting tissue and other biological specimens for genomic analysis are encouraged to obtain informed consent for broad data sharing. Our purpose was to assess the effect on research enrollment and data sharing decisions of three different consent types (traditional, binary, or tiered) with varying levels of control and choices regarding data sharing.<h4>Methods</h4>A single-blinded, ran ...[more]