Dataset Information

Willingness of Parkinson's disease patients to participate in research using internet-based technology.

ABSTRACT:

Background

Motor impairment and travel time have been shown to be important barriers to recruitment for Parkinson's disease (PD) clinical trials. This study determined whether use of Internet-based video communication for study visits would improve likelihood of participating in PD clinical trials.

Subjects and methods

University of Utah PD clinic patients were invited to complete a survey asking if they would be willing to participate in a hypothetical research study under four different scenarios. McNemar's test was used to test the hypothesis that remote assessments would improve willingness to participate.

Results

Willingness to participate was 101/113 (87%) in the standard scenario. Willingness to participate was highest (93%; p=0.046) with most visits occurring via telemedicine at a local clinic, followed by some visits occurring via telemedicine at a local clinic (91%; p=0.157). Willingness to participate was lower with some (80%; p=0.008) or most (82%; p=0.071) visits occurring by home telemonitoring.

Conclusions

Use of telemedicine may be an acceptable means to improve participation in clinical trials. This would need to be confirmed with the use of a larger-scale inquiry involving rural populations. Future research should assess subject or caregiver comfort and trainability with respect to computer-based technology in the home and systems barriers for wider implementation of telemedicine in neurology.

SUBMITTER: Shprecher D

PROVIDER: S-EPMC3491628 | biostudies-literature | 2012 Nov

REPOSITORIES: biostudies-literature

ACCESS DATA

Publications

Willingness of Parkinson's disease patients to participate in research using internet-based technology.

Shprecher David D Noyes Katia K Biglan Kevin K Wang Dongwen D Dorsey E Ray ER Kurlan Roger R Adams Michael Jacob MJ

Telemedicine journal and e-health : the official journal of the American Telemedicine Association 20120906 9

<h4>Background</h4>Motor impairment and travel time have been shown to be important barriers to recruitment for Parkinson's disease (PD) clinical trials. This study determined whether use of Internet-based video communication for study visits would improve likelihood of participating in PD clinical trials.<h4>Subjects and methods</h4>University of Utah PD clinic patients were invited to complete a survey asking if they would be willing to participate in a hypothetical research study under four d ...[more]

PMID: 22954069

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Dataset Information

Willingness of Parkinson's disease patients to participate in research using internet-based technology.

Background

Subjects and methods

Results

Conclusions

Publications

Willingness of Parkinson's disease patients to participate in research using internet-based technology.

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