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Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey.


ABSTRACT:

Background

For many childhood cancer survivors follow-up care is important long after treatment completion. We aimed to describe the availability and characteristics of long-term follow-up programs (LTFU) across Europe, their content and aims, their problems, and to assess opinions on different models of LTFU.

Methodology/principal findings

We asked 179 pediatric oncology institutions in 20 European countries to complete an online survey on LTFU available at their institution. Of 110 respondents (62% response), 66% reported having LTFU for pediatric survivors, 38% for adult survivors of childhood cancer. Availability varied widely across European regions, from 9% of institutions in Northern Europe reporting LTFU for adult survivors to 83% of institution on the British Isles reporting LTFU for pediatric survivors. Pediatric and adult LTFU were usually located in pediatric hospitals and run by pediatric oncologists. Content of follow-up included screening for adverse outcomes and health education. Important problems included lack of time, personnel and funding. Most institutions without LTFU reported that they would like to offer a program (86%).

Conclusion/significance

Despite general agreement on the need of follow-up care, there is still a lack of well-organized LTFU for survivors of childhood cancer across Europe.

SUBMITTER: Essig S 

PROVIDER: S-EPMC3534070 | biostudies-literature | 2012

REPOSITORIES: biostudies-literature

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Publications

Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey.

Essig Stefan S   Skinner Roderick R   von der Weid Nicolas X NX   Kuehni Claudia E CE   Michel Gisela G  

PloS one 20121231 12


<h4>Background</h4>For many childhood cancer survivors follow-up care is important long after treatment completion. We aimed to describe the availability and characteristics of long-term follow-up programs (LTFU) across Europe, their content and aims, their problems, and to assess opinions on different models of LTFU.<h4>Methodology/principal findings</h4>We asked 179 pediatric oncology institutions in 20 European countries to complete an online survey on LTFU available at their institution. Of  ...[more]

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