Ontology highlight
ABSTRACT:
SUBMITTER: Lakes KD
PROVIDER: S-EPMC3535554 | biostudies-literature | 2013 Jan
REPOSITORIES: biostudies-literature
Lakes Kimberley D KD Vaughan Elaine E Lemke Amy A Jones Marissa M Wigal Timothy T Baker Dean D Swanson James M JM Burke Wylie W
American journal of medical genetics. Part A 20121213 1
The objectives of this study were to study maternal preferences for the return of their child's genetic results and to describe the experiences, perceptions, attitudes, and values that are brought to bear when individuals from different racial and cultural backgrounds consider participating in genetic research. We recruited women with diverse sociodemographic profiles to participate in seven focus groups. Twenty-eight percent of participants self-identified as Hispanic; 49% as White, non-Hispani ...[more]