Quality of life among parents of children with phenylketonuria (PKU).

ABSTRACT: BACKGROUND: Parents of children with chronic conditions are known to be at risk of impairment in their quality of life (QoL). Studies considering other chronic conditions proposed diverse factors to have an impact on the parent's QoL. So far, there has been little research on parents who have a child with phenylketonuria (PKU). This study was designed to evaluate the parental quality of life (PQoL) of parents of children and adolescents who have PKU and identify possible predictors of PQoL. METHODS: In this cross-sectional study 89 parents completed self-report measures of PQoL, family stress, social support, and parental coping. To determine the impact of these potential predictors on PQoL, regression and mediation analyses were performed. RESULTS: Most parents coped well with their children's metabolic disorder. Family stress (??=?-0.42; p?

SUBMITTER: Fidika A 

PROVIDER: S-EPMC3626680 | biostudies-literature | 2013

REPOSITORIES: biostudies-literature