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Patient awareness and approval for an opt-out genomic biorepository.


ABSTRACT: In this study, we sought to assess patient awareness and perceptions of an opt-out biorepository.We conducted exit interviews with adult patients and parents of pediatric patients having their blood drawn as part of their clinical care at Vanderbilt University Medical Center (TN, USA).32.9% of all patients and parents of pediatric patients report having heard of the opt-out biorepository, while 92.4% approve of this research effort based on a brief description. Awareness that leftover blood could be used for research increased among adult patients during the study period, from 34.3 to 50.0%.These findings will inform ongoing assessments of the suitability of opt-out and opt-in methods as alternatives to written informed consent for inclusion in a biorepository.

SUBMITTER: Brothers KB 

PROVIDER: S-EPMC3882901 | biostudies-literature | 2013 Jun

REPOSITORIES: biostudies-literature

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Patient awareness and approval for an opt-out genomic biorepository.

Brothers Kyle B KB   Westbrook Mathew J MJ   Wright M Frances MF   Myers John A JA   Morrison Daniel R DR   Madison Jennifer L JL   Pulley Jill M JM   Clayton Ellen Wright EW  

Personalized medicine 20130601 4


<h4>Aim</h4>In this study, we sought to assess patient awareness and perceptions of an opt-out biorepository.<h4>Materials & methods</h4>We conducted exit interviews with adult patients and parents of pediatric patients having their blood drawn as part of their clinical care at Vanderbilt University Medical Center (TN, USA).<h4>Results</h4>32.9% of all patients and parents of pediatric patients report having heard of the opt-out biorepository, while 92.4% approve of this research effort based on  ...[more]

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