What do parents of children with dysphagia think about their MDT? A qualitative study.

ABSTRACT:

Objectives

To seek the experiences and perspectives of parents caring for children with dysphagia, with emphasis on their experiences of working within their child's multidisciplinary team (MDT).

Setting

This research was completed in community settings, within families' homes across the UK.

Participants

14 families self-selected to participate in the study. Criteria specified that participants must care for a child under the age of 18 and to decrease ambiguity the term 'diagnosis of dysphagia' was defined as the need for modified (thickened) fluids.

Exclusion criteria

caring for an adult over the age of 18; diet and fluid modifications for reasons other than dysphagia (eg, for symptomatic treatment of gastro-oesophageal reflux disease. Participants were interv

SUBMITTER: Cowpe Jebson E 

PROVIDER: S-EPMC4202020 | biostudies-literature | 2014 Oct

REPOSITORIES: biostudies-literature