Dataset Information

Development of patient-centred standards of care for osteoarthritis in Europe: the eumusc.net-project.

ABSTRACT:

Objective

The eumusc.net project is an initiative founded by the European Community and the European League Against Rheumatism. One aim of the project was to facilitate equal standards for musculoskeletal health across Europe. The aim of this work-package was to develop patient-centred and consensus based standards of care (SOC) for osteoarthritis (OA), which should be available in a professional and a patient version.

Methods

A systematic review concerning guidelines dealing with OA was conducted. Furthermore, experts in musculoskeletal diseases were contacted to ensure that 'grey' literature was not excluded. Documents that fulfilled predefined inclusion/exclusion criteria were included and all interventions for OA were extracted and categorised. Based on this list of interventions, a three round Delphi exercise with an international and multidisciplinary expert panel, including patient research partners, was performed to achieve expert consensus.

Results

Six documents were included and used for further analysis. Out of them, 46 interventions have been extracted and 10 consensus based SOC were formulated. In addition, a patient version, written in a lay-understandable wording and in the format of checklist questions was developed. An example is SOC 5: "People with OA should achieve optimal pain control using pharmacological and non-pharmacological means." The matching patient-centred checklist question reads: "Do I know how to control pain associated with OA?"

Conclusions

The SOC for OA will be available in the 23 languages of the European Union to enhance unified information to patients and professionals and to further harmonise the treatment/care of OA within Europe.

SUBMITTER: Stoffer MA

PROVIDER: S-EPMC4431331 | biostudies-literature | 2015 Jun

REPOSITORIES: biostudies-literature

ACCESS DATA

Publications

Development of patient-centred standards of care for osteoarthritis in Europe: the eumusc.net-project.

Stoffer Michaela A MA Smolen Josef S JS Woolf Anthony A Ambrozic Ales A Berghea Florian F Boonen Annelies A Bosworth Ailsa A Carmona Loreto L Dougados Maxime M de Wit Maarten M Erwin Josephine J Fialka-Moser Veronika V Ionescu Ruxandra R Keenan Anne-Maree AM Loza Estibaliz E Moe Rikke H RH Greiff Rolf R Olejnik Pawel P Petersson Ingemar F IF Rat Anne-Christine AC Rozman Blaz B Strömbeck Britta B Tanner Lorraine L Uhlig Till T Vlieland Theodora P M Vliet TP Stamm Tanja A TA

Annals of the rheumatic diseases 20141121 6

<h4>Objective</h4>The eumusc.net project is an initiative founded by the European Community and the European League Against Rheumatism. One aim of the project was to facilitate equal standards for musculoskeletal health across Europe. The aim of this work-package was to develop patient-centred and consensus based standards of care (SOC) for osteoarthritis (OA), which should be available in a professional and a patient version.<h4>Methods</h4>A systematic review concerning guidelines dealing with ...[more]

PMID: 25416720

Similar Datasets

Project description:BACKGROUND:Different models for care pathways involving both specialist and primary care have been developed to ensure adequate follow-up after discharge. These care pathways have mainly been developed and run by specialist care and have been disease-based. In this study, primary care providers took the initiative to develop a model for integrated care pathways across care levels for older patients in need of home care services after discharge. Initially, the objective was to develop pathways for patients diagnosed with heart failure, COPD and stroke. The aim of this paper is to investigate the process and the experiences of the participants in this developmental work. The participants were drawn from three hospitals, six municipalities and patient organizations in Central Norway. METHODS:This qualitative study used focus group interviews, written material and observations. Representatives from the hospitals, municipalities and patient organizations taking part in the development process were chosen as informants. RESULTS:The development process was very challenging because of the differing perspectives on care and different organizational structures in specialist care and primary care. In this study, the disease perspective, being dominant in specialist care, was not found to be suitable for use in primary health care because of the need to cover a broader perspective including the patient's functioning, social situation and his or her preferences. Furthermore, managing several different disease-based care pathways was found to be unsuitable in home care services, as well as unsuitable for a population characterized by a substantial degree of comorbidity. The outcome of the development process was a consensus that outlined a single, common patient-centred care pathway for transition from hospital to follow-up in primary care. The pathway was suitable for most common diseases and included functional and social aspects as well as disease follow-up, thus merging the differing perspectives. The disease-based care pathways were kept for use within the hospitals. CONCLUSIONS:Disease-based care pathways for older patients were found to be neither feasible nor sustainable in primary care. A common patient-centred care pathway that could meet the needs of multi- morbid patients was recommended.

Dataset Information

Development of patient-centred standards of care for osteoarthritis in Europe: the eumusc.net-project.

Objective

Methods

Results

Conclusions

Publications

Development of patient-centred standards of care for osteoarthritis in Europe: the eumusc.net-project.

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