Dataset Information

Development and preliminary evaluation of an online educational video about whole-genome sequencing for research participants, patients, and the general public.

ABSTRACT:

Background

As whole-genome sequencing (WGS) increases in availability, WGS educational aids are needed for research participants, patients, and the general public. Our aim was therefore to develop an accessible and scalable WGS educational aid.

Methods

We engaged multiple stakeholders in an iterative process over a 1-year period culminating in the production of a novel 10-minute WGS educational animated video, "Whole Genome Sequencing and You" (https://goo.gl/HV8ezJ). We then presented the animated video to 281 online-survey respondents (the video-information group). There were also two comparison groups: a written-information group (n = 281) and a no-information group (n = 300).

Results

In the video-information group, 79% reported the video was easy to understand, satisfaction scores were high (mean 4.00 on 1-5 scale, where 5 = high satisfaction), and knowledge increased significantly. There were significant differences in knowledge compared with the no-information group but few differences compared with the written-information group. Intention to receive personal results from WGS and decisional conflict in response to a hypothetical scenario did not differ between the three groups.

Conclusions

The educational animated video, "Whole Genome Sequencing and You," was well received by this sample of online-survey respondents. Further work is needed to evaluate its utility as an aid to informed decision making about WGS in other populations.Genet Med 18 5, 501-512.

SUBMITTER: Sanderson SC

PROVIDER: S-EPMC4857185 | biostudies-literature | 2016 May

REPOSITORIES: biostudies-literature

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Publications

Development and preliminary evaluation of an online educational video about whole-genome sequencing for research participants, patients, and the general public.

Sanderson Saskia C SC Sanderson Saskia C SC Suckiel Sabrina A SA Zweig Micol M Bottinger Erwin P EP Jabs Ethylin Wang EW Richardson Lynne D LD

Genetics in medicine : official journal of the American College of Medical Genetics 20150903 5

<h4>Background</h4>As whole-genome sequencing (WGS) increases in availability, WGS educational aids are needed for research participants, patients, and the general public. Our aim was therefore to develop an accessible and scalable WGS educational aid.<h4>Methods</h4>We engaged multiple stakeholders in an iterative process over a 1-year period culminating in the production of a novel 10-minute WGS educational animated video, "Whole Genome Sequencing and You" (https://goo.gl/HV8ezJ). We then pres ...[more]

PMID: 26334178

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Dataset Information

Development and preliminary evaluation of an online educational video about whole-genome sequencing for research participants, patients, and the general public.

Background

Methods

Results

Conclusions

Publications

Development and preliminary evaluation of an online educational video about whole-genome sequencing for research participants, patients, and the general public.

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