Catastrophic expenditure and impoverishment of patients affected by 7 rare diseases in China.

ABSTRACT:

Background

China is actively promoting regulation of rare diseases, rare disease and orphan drugs have been formally incorporated into the national planning. However, few studies have been done to evaluate the affordability of rare disease patients in China. This study aims to provide policy recommendations for the establishment of social security mechanism for rare diseases in China, so as to address the problem of poverty caused by these diseases.

Methods

A total of 7 rare diseases were selected by Delphi method. Affordability of treatment for the 7 rare diseases was assessed through annual per capital income, catastrophic expenditure and impoverishment expenditure among urban and rural residents in China.

Results

Assessed through annual per capital income, health e

SUBMITTER: Xin XX 

PROVIDER: S-EPMC4895890 | biostudies-literature | 2016 Jun

REPOSITORIES: biostudies-literature