Dataset Information

Linking Data for Mothers and Babies in De-Identified Electronic Health Data.

ABSTRACT:

Objective

Linkage of longitudinal administrative data for mothers and babies supports research and service evaluation in several populations around the world. We established a linked mother-baby cohort using pseudonymised, population-level data for England.

Design and setting

Retrospective linkage study using electronic hospital records of mothers and babies admitted to NHS hospitals in England, captured in Hospital Episode Statistics between April 2001 and March 2013.

Results

Of 672,955 baby records in 2012/13, 280,470 (42%) linked deterministically to a maternal record using hospital, GP practice, maternal age, birthweight, gestation, birth order and sex. A further 380,164 (56%) records linked using probabilistic methods incorporating additional variables that could differ between mother/baby records (admission dates, ethnicity, 3/4-character postcode district) or that include missing values (delivery variables). The false-match rate was estimated at 0.15% using synthetic data. Data quality improved over time: for 2001/02, 91% of baby records were linked (holding the estimated false-match rate at 0.15%). The linked cohort was representative of national distributions of gender, gestation, birth weight and maternal age, and captured approximately 97% of births in England.

Conclusion

Probabilistic linkage of maternal and baby healthcare characteristics offers an efficient way to enrich maternity data, improve data quality, and create longitudinal cohorts for research and service evaluation. This approach could be extended to linkage of other datasets that have non-disclosive characteristics in common.

SUBMITTER: Harron K

PROVIDER: S-EPMC5072610 | biostudies-literature | 2016

REPOSITORIES: biostudies-literature

ACCESS DATA

Publications

Linking Data for Mothers and Babies in De-Identified Electronic Health Data.

Harron Katie K Gilbert Ruth R Cromwell David D van der Meulen Jan J

PloS one 20161020 10

<h4>Objective</h4>Linkage of longitudinal administrative data for mothers and babies supports research and service evaluation in several populations around the world. We established a linked mother-baby cohort using pseudonymised, population-level data for England.<h4>Design and setting</h4>Retrospective linkage study using electronic hospital records of mothers and babies admitted to NHS hospitals in England, captured in Hospital Episode Statistics between April 2001 and March 2013.<h4>Results< ...[more]

PMID: 27764135

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Dataset Information

Linking Data for Mothers and Babies in De-Identified Electronic Health Data.

Objective

Design and setting

Results

Conclusion

Publications

Linking Data for Mothers and Babies in De-Identified Electronic Health Data.

Similar Datasets

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