Dataset Information

Physicians Caring for Celiac Patients do not Routinely Recommend Screening of First-Degree Family Members.

ABSTRACT:

Aim

Screening first-degree relatives of celiac disease (CD) patients offers an opportunity to diagnose CD in a high-risk population.This study aims to determine how frequently CD patients receive a physician-issued recommendation for first-degree relative screening.

Materials and methods

A 12-question survey assessing whether CD patients receive a physician recommendation to screen first-degree relatives for CD, and the impact of such a recommendation, was validated with outpatients in a university gastroenterology practice ("University"). The 12-question survey was then distributed online to members of a celiac organization - the National Foundation for Celiac Awareness ("NFCA"). Results were collected over 3 months. Univariate analysis was used to compare cohort means and assess the association between demographic and diagnostic factors and first-degree relative screening recommendations.

Results

87 University patients participated in the validation phase. Test-retest reliability of 4 key survey questions was high (Kappa coefficient > 0.80). The main analyses were based on data from 677 NFCA and 82 University respondents. Respondents were predominantly female, with a mean age of 45 years. Significantly more University patients received a recommendation for screening (78% vs 44%, p < 0.001). Ninety-eight percent receiving a screening recommendation (both groups) discussed this with family members, leading to CD screening (University 71%, NFCA 79%) and, ultimately, a CD diagnosis (University 18%, NFCA 27%).

Conclusions

Physicians of CD patients often do not recommend screening first-degree family members. The high clinical impact of this recommendation suggests that greater physician compliance with screening may increase the diagnosis of CD in high risk individuals.

SUBMITTER: Roy A

PROVIDER: S-EPMC5289751 | biostudies-literature | 2015 Dec

REPOSITORIES: biostudies-literature

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Publications

Physicians Caring for Celiac Patients do not Routinely Recommend Screening of First-Degree Family Members.

Roy Abhik A Smith Colin C Daskalakis Constantine C Voorhees Kristin K Moleski Stephanie S DiMarino Anthony J AJ Kastenberg David D

Journal of gastroenterology and hepatology research 20151221 12

<h4>Aim</h4>Screening first-degree relatives of celiac disease (CD) patients offers an opportunity to diagnose CD in a high-risk population.This study aims to determine how frequently CD patients receive a physician-issued recommendation for first-degree relative screening.<h4>Materials and methods</h4>A 12-question survey assessing whether CD patients receive a physician recommendation to screen first-degree relatives for CD, and the impact of such a recommendation, was validated with outpatien ...[more]

PMID: 28164022

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Dataset Information

Physicians Caring for Celiac Patients do not Routinely Recommend Screening of First-Degree Family Members.

Aim

Materials and methods

Results

Conclusions

Publications

Physicians Caring for Celiac Patients do not Routinely Recommend Screening of First-Degree Family Members.

Similar Datasets

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