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Best practices for the management of local-regional recurrent chordoma: a position paper by the Chordoma Global Consensus Group.

ABSTRACT: Chordomas are rare, malignant bone tumors of the skull-base and axial skeleton. Until recently, there was no consensus among experts regarding appropriate clinical management of chordoma, resulting in inconsistent care and suboptimal outcomes for many patients. To address this shortcoming, the European Society of Medical Oncology (ESMO) and the Chordoma Foundation, the global chordoma patient advocacy group, convened a multi-disciplinary group of chordoma specialists to define by consensus evidence-based best practices for the optimal approach to chordoma. In January 2015, the first recommendations of this group were published, covering the management of primary and metastatic chordomas. Additional evidence and further discussion were needed to develop recommendations about the management of local-regional failures. Thus, ESMO and CF convened a second consensus group meeting in November 2015 to address the treatment of locally relapsed chordoma. This meeting involved over 60 specialists from Europe, the United States and Japan with expertise in treatment of patients with chordoma. The consensus achieved during that meeting is the subject of the present publication and complements the recommendations of the first position paper.

SUBMITTER: Stacchiotti S

PROVIDER: S-EPMC5452071 | biostudies-literature | 2017 Jun

REPOSITORIES: biostudies-literature

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Best practices for the management of local-regional recurrent chordoma: a position paper by the Chordoma Global Consensus Group.

Stacchiotti S S Gronchi A A Fossati P P Akiyama T T Alapetite C C Baumann M M Blay J Y JY Bolle S S Boriani S S Bruzzi P P Capanna R R Caraceni A A Casadei R R Colia V V Debus J J Delaney T T Desai A A Dileo P P Dijkstra S S Doglietto F F Doglietto F F Flanagan A A Froelich S S Gardner P A PA Gelderblom H H Gokaslan Z L ZL Haas R R Heery C C Hindi N N Hohenberger P P Hornicek F F Imai R R Jeys L L Jones R L RL Kasper B B Kawai A A Krengli M M Leithner A A Logowska I I Martin Broto J J Mazzatenta D D Morosi C C Nicolai P P Norum O J OJ Patel S S Penel N N Picci P P Pilotti S S Radaelli S S Ricchini F F Rutkowski P P Scheipl S S Sen C C Tamborini E E Thornton K A KA Timmermann B B Torri V V Tunn P U PU Uhl M M Yamada Y Y Weber D C DC Vanel D D Varga P P PP Vleggeert-Lankamp C L A CLA Casali P G PG Sommer J J

Annals of oncology : official journal of the European Society for Medical Oncology 20170601 6

Chordomas are rare, malignant bone tumors of the skull-base and axial skeleton. Until recently, there was no consensus among experts regarding appropriate clinical management of chordoma, resulting in inconsistent care and suboptimal outcomes for many patients. To address this shortcoming, the European Society of Medical Oncology (ESMO) and the Chordoma Foundation, the global chordoma patient advocacy group, convened a multi-disciplinary group of chordoma specialists to define by consensus evide ...[more]

PMID: 28184416

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Project description:ObjectivesInformation professionals have supported medical providers, administrators and decision-makers, and guideline creators in the COVID-19 response. Searching COVID-19 literature presented new challenges, including the volume and heterogeneity of literature and the proliferation of new information sources, and exposed existing issues in metadata and publishing. An expert panel developed best practices, including recommendations, elaborations, and examples, for searching during public health emergencies.MethodsProject directors and advisors developed core elements from experience and literature. Experts, identified by affiliation with evidence synthesis groups, COVID-19 search experience, and nomination, responded to an online survey to reach consensus on core elements. Expert participants provided written responses to guiding questions. A synthesis of responses provided the foundation for focus group discussions. A writing group then drafted the best practices into a statement. Experts reviewed the statement prior to dissemination.ResultsTwelve information professionals contributed to best practice recommendations on six elements: core resources, search strategies, publication types, transparency and reproducibility, collaboration, and conducting research. Underlying principles across recommendations include timeliness, openness, balance, preparedness, and responsiveness.ConclusionsThe authors and experts anticipate the recommendations for searching for evidence during public health emergencies will help information specialists, librarians, evidence synthesis groups, researchers, and decision-makers respond to future public health emergencies, including but not limited to disease outbreaks. The recommendations complement existing guidance by addressing concerns specific to emergency response. The statement is intended as a living document. Future revisions should solicit input from a broader community and reflect conclusions of meta-research on COVID-19 and health emergencies.

Dataset Information

Best practices for the management of local-regional recurrent chordoma: a position paper by the Chordoma Global Consensus Group.

Publications

Best practices for the management of local-regional recurrent chordoma: a position paper by the Chordoma Global Consensus Group.

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