Ontology highlight
ABSTRACT:
SUBMITTER: Ploug T
PROVIDER: S-EPMC5495206 | biostudies-literature | 2017
REPOSITORIES: biostudies-literature
PloS one 20170703 7
Whole genome or exome sequencing is increasingly used in the clinical contexts, and 'incidental' findings are generated. There is need for an adequate policy for the reporting of these findings to individuals. Such a policy has been suggested by the American College of Medical Genetics and Genomics (ACMG). We argue that ACMG's policy is overly paternalistic, and that an adequate policy must take into account population preferences. We conducted a choice based conjoint survey of population prefer ...[more]