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Formation and psychometric evaluation of a health-related quality of life instrument for children living with HIV in India.


ABSTRACT: In-depth interviews and focus group discussions were conducted to inform the development of an instrument to measure the health-related quality of life of children living with HIV. The QOL-CHAI instrument consists of four generic core scales of the "Pediatric Quality of Life Inventory" and two HIV-targeted scales-"symptoms" and "discrimination." A piloting exercise involving groups of children living with HIV and HIV-negative children born to HIV-infected parents provided evidence for the acceptable psychometric properties and usability of the instrument. It is expected that the QOL-CHAI can serve well as a brief, standardized, and culturally appropriate instrument for assessing health-related quality of life of Indian children living with HIV.

SUBMITTER: Das A 

PROVIDER: S-EPMC5562529 | biostudies-literature | 2018 Mar

REPOSITORIES: biostudies-literature

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Formation and psychometric evaluation of a health-related quality of life instrument for children living with HIV in India.

Das Aritra A   Detels Roger R   Afifi Abdelmonem A AA   Javanbakht Marjan M   Sorvillo Frank F   Panda Samiran S  

Journal of health psychology 20161003 4


In-depth interviews and focus group discussions were conducted to inform the development of an instrument to measure the health-related quality of life of children living with HIV. The QOL-CHAI instrument consists of four generic core scales of the "Pediatric Quality of Life Inventory" and two HIV-targeted scales-"symptoms" and "discrimination." A piloting exercise involving groups of children living with HIV and HIV-negative children born to HIV-infected parents provided evidence for the accept  ...[more]

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