Feasibility of RetinoQuest: e-health application to facilitate and improve additional care for retinoblastoma survivors.
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ABSTRACT: Purpose
The current study aimed to evaluate the feasibility of RetinoQuest in clinical practice, from survivors and healthcare professionals' (HCPs) point of view.Methods
RetinoQuest is a touch screen computer program to monitor health-related quality of life (HRQoL) of retinoblastoma survivors via patient-reported outcome measures (PROMs) targeting children (4-10 years) as evaluated by their parents (proxy measures), adolescents (11-18 years), and adults. Feasibility was evaluated by the actual time taken to complete the PROMs, acceptability of the time as perceived by the users, the content of PROMs in RetinoQuest, and overall satisfaction with RetinoQuest.Results
Ninety-six survivors participated: 41 parents of children, 38 adolescents, and 17 adults. Mean time to complete the evaluation form was 7.8 min (median 6.7, range 2.4-24.5), and 90% of the users stated that the time needed to complete PROMs in RetinoQuest was acceptable. The majority of users reported that it was important to answer the questions (88% of the parents, 66% of the adolescents, and 76% of the adult survivors) and that all important issues were covered, e.g., no missing questions (78, 84, and 76%, respectively). Satisfaction rate was high, 7.8 according to parents, 8.1 according to adolescents, and 7.7 for adults.Conclusions
RetinoQuest is a feasible e-health application to monitor HRQoL in retinoblastoma survivors in clinical practice.Implications for cancer survivors
This tool allows for open and structured communication which can lead to early detection of psychosocial impacts on quality of life and referral of the retinoblastoma survivors.
SUBMITTER: McNeill NA
PROVIDER: S-EPMC5671548 | biostudies-literature | 2017 Dec
REPOSITORIES: biostudies-literature
Publications
Feasibility of RetinoQuest: e-health application to facilitate and improve additional care for retinoblastoma survivors.
McNeill Nuray A NA Kors Wijnanda A WA Bosscha Machteld I MI van Dijk Jennifer J Fabius Armida W M AWM Houffelaar Ton T Verdonck-de Leeuw Irma M IM Moll Annette C AC
Journal of cancer survivorship : research and practice 20170925 6
<h4>Purpose</h4>The current study aimed to evaluate the feasibility of RetinoQuest in clinical practice, from survivors and healthcare professionals' (HCPs) point of view.<h4>Methods</h4>RetinoQuest is a touch screen computer program to monitor health-related quality of life (HRQoL) of retinoblastoma survivors via patient-reported outcome measures (PROMs) targeting children (4-10 years) as evaluated by their parents (proxy measures), adolescents (11-18 years), and adults. Feasibility was evaluat ...[more]
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