Survey of financial burden of families in the U.S. with children using home mechanical ventilation.

ABSTRACT:

Aim

To describe and quantify the out-of-pocket expenses, employment loss, and other financial impact related to caring for a child using home mechanical ventilation (HMV).

Method

We conducted a cross-sectional survey of U.S. families with children who used HMV. Eligible participants were invited to complete a questionnaire addressing household and child characteristics, out-of-pocket expenses, employment loss/reduction, and financial stress. Participants were recruited with the help of three national patient registries.

Results

Two hundred twenty-six participants from 32 states (152 with children who used invasive ventilation and 74 with children who used noninvasive ventilation) completed the questionnaire. Participants' median reported yearly household income was $9

SUBMITTER: Edwards JD 

PROVIDER: S-EPMC5737909 | biostudies-literature | 2018 Jan

REPOSITORIES: biostudies-literature