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Awareness and Misperceptions of Hospice and Palliative Care: A Population-Based Survey Study.

ABSTRACT: BACKGROUND:Despite the documented benefits of palliative and hospice care on improving patients' quality of life, these services remain underutilized. Multiple factors limit the utilization of these services, including patients' and caregivers' lack of knowledge and misperceptions. OBJECTIVES:To examine palliative and hospice care awareness, misperceptions, and receptivity among community-dwelling adults. DESIGN:Cross-sectional study. SUBJECTS:New York State residents ?18 years old who participated in the 2016 Empire State Poll. OUTCOMES MEASURED:Palliative and hospice care awareness, misperceptions, and receptivity. RESULTS:Of the 800 participants, 664 (83%) and 216 (27%) provided a definition of hospice care and palliative care, respectively. Of those who defined hospice care, 399 (60%) associated it with end-of-life care, 89 (13.4%) mentioned it was comfort care, and 35 (5.3%) reported hospice care provides care to patients and families. Of those who defined palliative care (n = 216), 57 (26.4%) mentioned it provided symptom management to patients, 47 (21.9%) stated it was comfort care, and 19 (8.8%) reported it was applicable in any course of an illness. Of those who defined hospice or palliative care, 248 (37.3%) had a misperception about hospice care and 115 (53.2%) had a misperception about palliative care. CONCLUSIONS:Most community-dwelling adults did not mention the major components of palliative and hospice care in their definitions, implying a low level of awareness of these services, and misinformation is common among community-dwelling adults. Palliative and hospice care education initiatives are needed to both increase awareness of and reduce misperceptions about these services.

SUBMITTER: Shalev A

PROVIDER: S-EPMC5866727 | biostudies-literature | 2018 Mar

REPOSITORIES: biostudies-literature

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Awareness and Misperceptions of Hospice and Palliative Care: A Population-Based Survey Study.

Shalev Ariel A Phongtankuel Veerawat V Kozlov Elissa E Shen Megan Johnson MJ Adelman Ronald D RD Reid M C MC

The American journal of hospice & palliative care 20170620 3

<h4>Background</h4>Despite the documented benefits of palliative and hospice care on improving patients' quality of life, these services remain underutilized. Multiple factors limit the utilization of these services, including patients' and caregivers' lack of knowledge and misperceptions.<h4>Objectives</h4>To examine palliative and hospice care awareness, misperceptions, and receptivity among community-dwelling adults.<h4>Design</h4>Cross-sectional study.<h4>Subjects</h4>New York State resident ...[more]

PMID: 28631493

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Project description:BackgroundAccess to hospice palliative care may improve quality of life, reduce the use of potentially aggressive end-of-life care and allow for death to occur outside of an acute care hospital. The aim of this study was to examine the impact of an ambulatory hospice palliative care program on end-of-life care compared to care received by a matched control group of deceased patients.MethodsThis retrospective study included patients who received hospice palliative care through the Symptom Management Program in Sudbury, Ontario, during 2012-2015. Using linked administrative health records, we defined a propensity-matched control group and derived 4 previously defined variables associated with aggressive end-of-life care (chemotherapy received in the last 2 wk of life, > 1 emergency department visit within 30 d of death, > 1 hospital admission within 30 d of death and at least 1 intensive care unit admission within 30 d of death). We also examined place of death. We measured family/caregiver satisfaction with care 3 months after the patient's death using the FAMCARE questionnaire.ResultsOf 914 eligible decedents enrolled in the Symptom Management Program, 754 (82.5%) were matched. Receiving care through the program was protective for most measures of aggressive end-of-life care (absolute risk reduction [ARR] 12.73, 95% confidence interval [CI] 12.65-12.81 for any end-of-life care outcome) and death in an acute care setting (ARR 19.89, 95% CI 19.78-20.00). Of the 450 family caregivers invited to complete the FAMCARE questionnaire, 190 (42.2%) returned completed surveys; following data linkage and matching, 96 (21.3%) were available for analysis. Satisfaction with care received within the program appeared high (mean total score 85.72/100).InterpretationProvision of hospice palliative care through this ambulatory program was associated with lower use of aggressive end-of-life care and death outside of an acute care hospital. Improving access could be expected to provide positive benefits at the individual and system level.

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Awareness and Misperceptions of Hospice and Palliative Care: A Population-Based Survey Study.

Publications

Awareness and Misperceptions of Hospice and Palliative Care: A Population-Based Survey Study.

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