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How a deliberative approach includes women in the decisions of screening mammography: a citizens' jury feasibility study in Andalusia, Spain.


ABSTRACT:

Objectives

To verify whether a citizens' jury study is feasible to the Andalusian population and to know if women, when better informed, are able to answer the research question of whether the Andalusian Public Health System must continue offering screening mammography to women aged 50-69. The reasons for the pertinent decision and recommendations to the political authorities will be stated.

Design

Qualitative research study with the methodology of citizens' jury.

Setting

Breast cancer screening programme in Andalusia (Spain).

Participants

Thirteen women aged 50-69 with secondary school or higher education accepted to participate as a jury. Two epidemiologists were the expert witnesses. The main researcher was the neutral moderator.

Interventions

Jury met on Monday, 15 February 2016. The moderator indicated to the jury that it had to assess the screening programme's key benefits and main harm. On Tuesday, 16 February, the expert witnesses positioned for and against the programme. On Thursday, 18 February, the jury deliberated, reached final conclusions, submitted its vote and stated its recommendations to politicians. The deliberation session was transcribed and analysed with the support of ATLAS.ti.5.2 software.

Primary and secondary outcome measures

Feasibility in the Andalusian population, women's vote and opinion, reasons for votes and recommendations to political authorities.

Results

Eleven participants voted yes and two voted no. There are three reasons to vote 'yes': health, the test nature, and individual freedom. Some women invoke the lack of efficacy and the cost to justify their negative vote, at least in universal terms. On completion, they made suggestions to be submitted to the pertinent authorities for the improvement of information, psychology services and research.

Conclusions

The deliberative strategy is feasible and causes a favourable positioning regarding screening mammography, although information changes the opinion of some women, who desire informed decision making and to keep or increase medicalisation in their lives.

SUBMITTER: Baena-Canada JM 

PROVIDER: S-EPMC5942446 | biostudies-literature | 2018 May

REPOSITORIES: biostudies-literature

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Publications

How a deliberative approach includes women in the decisions of screening mammography: a citizens' jury feasibility study in Andalusia, Spain.

Baena-Cañada José M JM   Luque-Ribelles Violeta V   Quílez-Cutillas Alicia A   Rosado-Varela Petra P   Benítez-Rodríguez Encarnación E   Márquez-Calderón Soledad S   Rivera-Bautista Juan Manuel JM  

BMJ open 20180505 5


<h4>Objectives</h4>To verify whether a citizens' jury study is feasible to the Andalusian population and to know if women, when better informed, are able to answer the research question of whether the Andalusian Public Health System must continue offering screening mammography to women aged 50-69. The reasons for the pertinent decision and recommendations to the political authorities will be stated.<h4>Design</h4>Qualitative research study with the methodology of citizens' jury.<h4>Setting</h4>B  ...[more]

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