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The kidney cancer research priority-setting partnership: Identifying the top 10 research priorities as defined by patients, caregivers, and expert clinicians.


ABSTRACT: It is critically important to define disease-specific research priorities to better allocate limited resources. There is growing recognition of the value of involving patients and caregivers, as well as expert clinicians in this process. To our knowledge, this has not been done this way for kidney cancer. Using the transparent and inclusive process established by the James Lind Alliance, the Kidney Cancer Research Network of Canada (KCRNC) sponsored a collaborative consensus-based priority-setting partnership (PSP) to identify research priorities in the management of kidney cancer. The final result was identification of 10 research priorities for kidney cancer, which are discussed in the context of current initiatives and gaps in knowledge. This process provided a systematic and effective way to collaboratively establish research priorities with patients, caregivers, and clinicians, and provides a valuable resource for researchers and funding agencies.

SUBMITTER: Jones J 

PROVIDER: S-EPMC5962944 | biostudies-literature | 2017 Dec

REPOSITORIES: biostudies-literature

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The kidney cancer research priority-setting partnership: Identifying the top 10 research priorities as defined by patients, caregivers, and expert clinicians.

Jones Jennifer J   Bhatt Jaimin J   Avery Jonathan J   Laupacis Andreas A   Cowan Katherine K   Basappa Naveen N   Basiuk Joan J   Canil Christina C   Al-Asaaed Sohaib S   Heng Daniel D   Wood Lori L   Stacey Dawn D   Kollmannsberger Christian C   Jewett Michael A S MAS  

Canadian Urological Association journal = Journal de l'Association des urologues du Canada 20171101 12


It is critically important to define disease-specific research priorities to better allocate limited resources. There is growing recognition of the value of involving patients and caregivers, as well as expert clinicians in this process. To our knowledge, this has not been done this way for kidney cancer. Using the transparent and inclusive process established by the James Lind Alliance, the Kidney Cancer Research Network of Canada (KCRNC) sponsored a collaborative consensus-based priority-setti  ...[more]

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