Dataset Information
Disparities in NICU quality of care: a qualitative study of family and clinician accounts.
Ontology highlight
ABSTRACT: Objective
To identify how family advocates and clinicians describe disparities in NICU quality of care in narrative accounts.Study design
Qualitative analysis of a survey requesting disparity stories at the 2016 VON Quality Congress. Accounts (324) were from a sample of RNs (n?=?114, 35%), MDs (n?=?109, 34%), NNPs (n?=?55, 17%), RN other (n?=?4, 1%), clinical other (n?=?25, 7%), family advocates (n?=?16, 5%), and unspecified (n?=?1, <1%).Results
Accounts (324) addressed non-exclusive disparities: 151 (47%) language; 97 (30%) culture or ethnicity; 72 (22%) race; 41 (13%) SES; 28 (8%) drug use; 18 (5%) immigration status or nationality; 16 (4%) sexual orientation or family status; 14 (4%) gender; 10 (3%) disability. We identified three types of disparate care: neglectful care 85 (26%), judgmental care 85 (26%), or systemic barriers to care 139 (44%).Conclusions
Nearly all accounts described differential care toward families, suggesting the lack of equitable family-centered care.
SUBMITTER: Sigurdson K
PROVIDER: S-EPMC5998372 | biostudies-literature | 2018 May
REPOSITORIES: biostudies-literature
Publications
Disparities in NICU quality of care: a qualitative study of family and clinician accounts.
Journal of perinatology : official journal of the California Perinatal Association 20180405 5
<h4>Objective</h4>To identify how family advocates and clinicians describe disparities in NICU quality of care in narrative accounts.<h4>Study design</h4>Qualitative analysis of a survey requesting disparity stories at the 2016 VON Quality Congress. Accounts (324) were from a sample of RNs (n = 114, 35%), MDs (n = 109, 34%), NNPs (n = 55, 17%), RN other (n = 4, 1%), clinical other (n = 25, 7%), family advocates (n = 16, 5%), and unspecified (n = 1, <1%).<h4>Results</h4>Accounts (324) addressed n ...[more]