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Dataset Information

Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire.


ABSTRACT:

Objective

To assess the psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire.

Methods

This study was a cross-sectional, multinational study. Participants were enrolled if they were more than 10 years old and people with haemophilia A or B or people without a bleeding disorder. Participants were invited through non-governmental patient organisations in 21 countries between 01/27/2016 and 02/23/2017. The following psychometric properties: missing data, floor and ceiling effects, exploratory factor analysis and internal consistency reliability were examined. A PROBE Score was derived and assessed for its convergent and known groups validity.

Results

The study analysed the data on 916 participants with median age of 37.0

SUBMITTER: Chai-Adisaksopha C 

PROVIDER: S-EPMC6089314 | biostudies-literature | 2018 Aug

REPOSITORIES: biostudies-literature

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