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Alzheimer Disease Clinical Trial Recruitment: Does Participation in a Brief Cognitive Screen at a Community Health Fair Promote Research Engagement?

ABSTRACT: BACKGROUND:Slow participant recruitment impedes Alzheimer disease research progress. Although research suggests that direct involvement with potential participants supports enrollment, strategies for how best to engage potential participants are still unclear. PURPOSE:This study explores whether community health fair (HF) attendees who engage in a brief cognitive screen (BCS) are more likely to enroll in research than attendees who do not complete a BCS. SUBJECTS:A total of 483 HF attendees. METHODS:Attendees were tracked for a 1-year period to ascertain research involvement. RESULTS:In total, 364 attendees expressed interest in research and 126 completed a BCS. Over the follow-up period, 21 individuals prescreened as eligible and 19 enrolled in an investigational study. Among all HF attendees, BCS completers had a 2.5-fold increase in subsequently prescreening as eligible as compared with non-BCS completers. However, when limited only to participants who stated an interest in research, this difference was no longer significant. CONCLUSIONS:Completing a BCS at a community event may be an indicator of future research engagement, but for those already interested in participation, the BCS may be a poor indicator of future involvement. The BCS may also reduce anxiety and stigma around memory evaluation, which may translate into research engagement in the future.

SUBMITTER: Barber JM

PROVIDER: S-EPMC6249071 | biostudies-literature | 2018 Oct-Dec

REPOSITORIES: biostudies-literature

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Alzheimer Disease Clinical Trial Recruitment: Does Participation in a Brief Cognitive Screen at a Community Health Fair Promote Research Engagement?

Barber Justin M JM Bardach Shoshana H SH Jicha Gregory A GA

Alzheimer disease and associated disorders 20181001 4

<h4>Background</h4>Slow participant recruitment impedes Alzheimer disease research progress. Although research suggests that direct involvement with potential participants supports enrollment, strategies for how best to engage potential participants are still unclear.<h4>Purpose</h4>This study explores whether community health fair (HF) attendees who engage in a brief cognitive screen (BCS) are more likely to enroll in research than attendees who do not complete a BCS.<h4>Subjects</h4>A total of ...[more]

PMID: 29944475

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Project description:ObjectiveTo elucidate factors that influence African American willingness to participate in health-related research studies.MethodsThe African American Alzheimer disease research study group at North Carolina A&T State University designed an in-person questionnaire and surveyed more than 700 African American adults on their willingness to participate in health-related research studies. The questionnaire was distributed and collected in a nonclinical setting during the years 2008 and 2009. This study was approved by the North Carolina A&T State University Institutional Review Board.ResultsOf the 733 valid respondents, 16% had previously participated in a health-related research study. Of these, more than 90% were willing to participate again in future research studies. Of the 614 who had never participated in a research study, more than 70% expressed willingness to participate. The majority (75%) of experienced research study participants (RSP) were older than 40 years compared with 45% of non-research study participants. Experienced research participants were also twice as likely to have a college degree compared with non-research study participants. Seventy-three percent of non-research study participants were willing to participate in research studies in the future. The factors that were probable impediments to participation included lack of time and trust. Men with knowledge of the Tuskegee Syphilis Study were 50% less likely to be willing to participate compared with those who had not heard of Tuskegee Syphilis Study.ConclusionsAfrican Americans are willing to participate in health-related research studies. Several factors such as the appropriate incentives, community trust building, outreach, and community partnership creation are necessary for engaging minority participants. Incorporating factors that target African American enrollment in research design and implementation, such as increased training of minority health ambassadors and African American researchers and public health specialists, are needed to better engage minorities across generations, in research.

Project description:There is a clear need for a state-of-the-art review of how public participation in climate change adaptation is being considered in research across academic communities: The Rio Declaration developed in 1992 at the UN Conference on Environment and Development (UNCED) included explicit goals of citizen participation and engagement in climate actions (Principle 10). Nation states were given special responsibility to facilitate these by ensuring access to information and opportunities to participate in decision-making processes. Since then the need for public participation has featured prominently in calls to climate action. Using text analysis to produce a corpus of abstracts drawn from Web of Science, a review of literature incorporating public participation and citizen engagement in climate change adaptation since 1992 reveals lexical, temporal, and spatial distribution dynamics of research on the topic. An exponential rise in research effort since the year 2000 is demonstrated, with the focus of research action on three substantial themes-risk, flood risk, and risk assessment, perception, and communication. These are critically reviewed and three substantive issues are considered: the paradox of participation, the challenge of governance transformation, and the need to incorporate psycho-social and behavioral adaptation to climate change in policy processes. Gaps in current research include a lack of common understanding of public participation for climate adaptation across disciplines; incomplete articulation of processes involving public participation and citizen engagement; and a paucity of empirical research examining how understanding and usage of influential concepts of risk, vulnerability and adaptive capacity varies among different disciplines and stakeholders. Finally, a provisional research agenda for attending to these gaps is described. This article is categorized under:Vulnerability and Adaptation to Climate Change > Institutions for AdaptationPolicy and Governance > Governing Climate Change in Communities, Cities, and Regions.

Dataset Information

Alzheimer Disease Clinical Trial Recruitment: Does Participation in a Brief Cognitive Screen at a Community Health Fair Promote Research Engagement?

Publications

Alzheimer Disease Clinical Trial Recruitment: Does Participation in a Brief Cognitive Screen at a Community Health Fair Promote Research Engagement?

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