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Global coverage of health information systems for kidney disease: availability, challenges, and opportunities for development.

ABSTRACT: Development and planning of health care services requires robust health information systems to define the burden of disease, inform policy development, and identify opportunities to improve service provision. The global coverage of kidney disease health information systems has not been well reported, despite their potential to enhance care. As part of the Global Kidney Health Atlas, a cross-sectional survey conducted by the International Society of Nephrology, data were collected from 117 United Nations member states on the coverage and scope of kidney disease health information systems and surveillance practices. Dialysis and transplant registries were more common in high-income countries. Few countries reported having nondialysis chronic kidney disease and acute kidney injury registries. Although 62% of countries overall could estimate their prevalence of chronic kidney disease, less than 24% of low-income countries had access to the same data. Almost all countries offered chronic kidney disease testing to patients with diabetes and hypertension, but few to high-risk ethnic groups. Two-thirds of countries were unable to determine their burden of acute kidney injury. Given the substantial heterogeneity in the availability of health information systems, especially in low-income countries and across nondialysis chronic kidney disease and acute kidney injury, a global framework for prioritizing development of these systems in areas of greatest need is warranted.

SUBMITTER: See EJ

PROVIDER: S-EPMC6336215 | biostudies-literature | 2018 Feb

REPOSITORIES: biostudies-literature

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Global coverage of health information systems for kidney disease: availability, challenges, and opportunities for development.

See Emily J EJ Alrukhaimi Mona M Ashuntantang Gloria E GE Bello Aminu K AK Bello Aminu K AK Bellorin-Font Ezequiel E Benghanem Gharbi Mohammed M Braam Branko B Feehally John J Harris David C DC Jha Vivekanand V Jindal Kailash K Kalantar-Zadeh Kamyar K Kazancioglu Rumeyza R Levin Adeera A Lunney Meaghan M Okpechi Ikechi G IG Olanrewaju Timothy Olusegun TO Osman Mohamed A MA Perl Jeffrey J Qarni Bilal B Rashid Harun Ur HU Rateb Ahmed A Rondeau Eric E Samimi Arian A Sikosana Majid L N MLN Sola Laura L Tchokhonelidze Irma I Wiebe Natasha N Yang Chih-Wei CW Ye Feng F Zemchenkov Alexander A Zhao Ming-Hui MH Johnson David W DW

Kidney international supplements 20180119 2

Development and planning of health care services requires robust health information systems to define the burden of disease, inform policy development, and identify opportunities to improve service provision. The global coverage of kidney disease health information systems has not been well reported, despite their potential to enhance care. As part of the Global Kidney Health Atlas, a cross-sectional survey conducted by the International Society of Nephrology, data were collected from 117 United ...[more]

PMID: 30675441

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Dataset Information

Global coverage of health information systems for kidney disease: availability, challenges, and opportunities for development.

Publications

Global coverage of health information systems for kidney disease: availability, challenges, and opportunities for development.

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