Impact of severe polyhandicap on parents' quality of life: A large French cross-sectional study.

ABSTRACT:

Background

Polyhandicap (PLH) is a condition of severe and complex disabilities and is defined by a combination of profound intellectual impairment and serious motor deficits. Parents of PLH individuals are chronically confronted with stressful situations. The aims of this study are i) to assess and compare the quality of life (QoL) of a large panel of parents of PLH individuals with age- and gender-matched controls and ii) to identify potential determinants of parents' QoL.

Method

We conducted a cross-sectional study. Parents were recruited from 4 specialized rehabilitation centres, 9 residential facilities, and a specialized paediatric/neurological department. The selection criteria were age above 18 years and being the mother/father of a PLH individual. The data collected

SUBMITTER: Rousseau MC 

PROVIDER: S-EPMC6361449 | biostudies-literature | 2019

REPOSITORIES: biostudies-literature