Dataset Information

What Do We Know About the Stewardship Gap.

ABSTRACT: In the 21st century, digital data drive innovation and decision-making in nearly every field. However, little is known about the total size, characteristics, and sustainability of these data. In the scholarly sphere, it is widely suspected that there is a gap between the amount of valuable digital data that is produced and the amount that is effectively stewarded and made accessible. The Stewardship Gap Project (http://bit.ly/stewardshipgap) investigates characteristics of, and measures, the stewardship gap for sponsored scholarly activity in the United States. This paper presents a preliminary definition of the stewardship gap based on a review of relevant literature and investigates areas of the stewardship gap for which metrics have been developed and measurements made, and where work to measure the stewardship gap is yet to be done. The main findings presented are 1) there is not one stewardship gap but rather multiple "gaps" that contribute to whether data is responsibly stewarded; 2) there are relationships between the gaps that can be used to guide strategies for addressing the various stewardship gaps; and 3) there are imbalances in the types and depths of studies that have been conducted to measure the stewardship gap.

SUBMITTER: York J

PROVIDER: S-EPMC6450659 | biostudies-literature | 2018

REPOSITORIES: biostudies-literature

ACCESS DATA

Publications

What Do We Know About the Stewardship Gap.

York Jeremy J Gutmann Myron M Berman Francine F

Data science journal 20180817

In the 21<sup>st</sup> century, digital data drive innovation and decision-making in nearly every field. However, little is known about the total size, characteristics, and sustainability of these data. In the scholarly sphere, it is widely suspected that there is a gap between the amount of valuable digital data that is produced and the amount that is effectively stewarded and made accessible. The Stewardship Gap Project (http://bit.ly/stewardshipgap) investigates characteristics of, and measur ...[more]

PMID: 30962801

Similar Datasets

Project description:ImportanceIn rural India, as in many developing countries, childhood mortality remains high and the quality of health care available is low. Improving care in such settings, where most health care practitioners do not have formal training, requires an assessment of the practitioners' knowledge of appropriate care and the actual care delivered (the know-do gap).ObjectiveTo assess the knowledge of local health care practitioners and the quality of care provided by them for childhood diarrhea and pneumonia in rural Bihar, India.Design, setting, and participantsWe conducted an observational, cross-sectional study of the knowledge and practice of 340 health care practitioners concerning the diagnosis and treatment of childhood diarrhea and pneumonia in Bihar, India, from June 29 through September 8, 2012. We used data from vignette interviews and unannounced standardized patients (SPs).Main outcomes and measuresFor SPs and vignettes, practitioner performance was measured using the numbers of key diagnostic questions asked and examinations conducted. The know-do gap was calculated by comparing fractions of practitioners asking key diagnostic questions on each method. Multivariable regressions examined the relation among diagnostic performance, prescription of potentially harmful treatments, and the practitioners' characteristics. We also examined correct treatment recommended by practitioners with both methods.ResultsPractitioners asked a mean of 2.9 diagnostic questions and suggested a mean of 0.3 examinations in the diarrhea vignette; mean numbers were 1.4 and 0.8, respectively, for the pneumonia vignette. Although oral rehydration salts, the correct treatment for diarrhea, are commonly available, only 3.5% of practitioners offered them in the diarrhea vignette. With SPs, no practitioner offered the correct treatment for diarrhea, and 13.0% of practitioners offered the correct treatment for pneumonia. Diarrhea treatment has a large know-do gap; practitioners asked diagnostic questions more frequently in vignettes than for SPs. Although only 20.9% of practitioners prescribed treatments that were potentially harmful in the diarrhea vignettes, 71.9% offered them to SPs (P < .001). Unqualified practitioners were more likely to prescribe potentially harmful treatments for diarrhea (adjusted odds ratio, 5.11 [95% CI, 1.24-21.13]). Higher knowledge scores were associated with better performance for treating diarrhea but not pneumonia.Conclusions and relevancePractitioners performed poorly with vignettes and SPs, with large know-do gaps, especially for childhood diarrhea. Efforts to improve health care for major causes of childhood mortality should emphasize strategies that encourage pediatric health care practitioners to diagnose and manage these conditions correctly through better monitoring and incentives in addition to practitioner training initiatives.

Project description:ObjectivesThere is a global increase in the number of women diagnosed with cancer during their pregnancy and a nascent evidence base to guide their supportive care. The purposes of this study were to (1) map research on the psychosocial issues affecting women and their partners on diagnosis and treatment for cancer during pregnancy; (2) determine available supportive care or educational interventions; and (3) identify knowledge gaps for future research and development.DesignScoping review.Search strategySix databases were searched (Scopus, CINAHL, PsycINFO, Medline, Intermid, Maternal and Infant Health) to retrieve primary research (January 1995 to November 2021) investigating women and/or their partner's decision-making and their psychosocial outcomes during and after pregnancy.Data extraction and synthesisSociodemographic, gestational and disease characteristics of participants and psychosocial issues identified were extracted. Leventhal's self-regulatory model of illness provided a framework for mapping study findings enabling evidence synthesis and gap analysis.ResultsTwelve studies were included, conducted in eight countries in six continents. Most women (70% of 217) were diagnosed with breast cancer during pregnancy. Reporting of sociodemographic, psychiatric, obstetric and oncological characteristics that are important in assessing psychosocial outcomes was inconsistent. None of the studies had a longitudinal design and no supportive care or educational interventions were identified. The gap analysis highlighted the lack of evidence about pathways to diagnosis, impact of late effects and how internal/social resources may affect outcomes.ConclusionsResearch has focused on women with gestational breast cancer. Little is known about those diagnosed with other cancers. We encourage future study designs to capture data on sociodemographic, obstetric, oncological and psychiatric characteristics and adopt a longitudinal approach to explore the longer term psychosocial impact on women and their families. Future research should include outcomes that are meaningful for women (and their partners) and draw on international collaboration to accelerate progress in this field.

Dataset Information

What Do We Know About the Stewardship Gap.

Publications

What Do We Know About the Stewardship Gap.

Similar Datasets

OmicsDI is part of the ELIXIR infrastructure

Tweets