Dataset Information

Experiences of community-dwelling older adults living with multiple chronic conditions: a qualitative study.

ABSTRACT:

Objectives

The aim of the study was to understand the experiences of living with multiple chronic conditions (MCC) from the perspective of community-living older adults with MCC.

Design

A qualitative study using an interpretive description approach.

Setting

Participants were recruited from southern Ontario, Canada.

Participants

21 community-living, older adults (?65 years) with an average of 7.4 chronic conditions including one of diabetes, dementia or stroke.

Methods

Data were collected through digitally-recorded, in-depth, semi-structured in-person interviews. Interview transcripts were analysed and coded using Thorne's interpretive description approach.

Results

Five themes were identified representing older adults' experiences of living with MCC: (a) trying to stay healthy while living with MCC, (b) depending on family caregivers for support with just about everything, (c) paying the high costs of living with MCC, (d) making healthcare decisions by proxy and (e) receiving healthcare services that do not address the complex needs of persons living with MCC.

Conclusions

The experience of living with MCC in the community was complex and multi-faceted. The need for a person-centred and family-centred approach to care in the community, which includes the coordination of health and social services that are tailored to the needs of older adults and their informal caregivers, was underscored. Such an approach would facilitate improved information-sharing and discussion of care management options between health professionals and their patients, enable older adults with MCC to actively engage in priority-setting and decision-making and may result in improved health and quality of life for older adults with MCC.

SUBMITTER: Ploeg J

PROVIDER: S-EPMC6475239 | biostudies-literature | 2019 Mar

REPOSITORIES: biostudies-literature

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Publications

Experiences of community-dwelling older adults living with multiple chronic conditions: a qualitative study.

Ploeg Jenny J Canesi Marta M D Fraser Kimberly K McAiney Carrie C Kaasalainen Sharon S Markle-Reid Maureen M Dufour Sinead S Garland Baird Lisa L Chambers Tracey T

BMJ open 20190320 3

<h4>Objectives</h4>The aim of the study was to understand the experiences of living with multiple chronic conditions (MCC) from the perspective of community-living older adults with MCC.<h4>Design</h4>A qualitative study using an interpretive description approach.<h4>Setting</h4>Participants were recruited from southern Ontario, Canada.<h4>Participants</h4>21 community-living, older adults (≥65 years) with an average of 7.4 chronic conditions including one of diabetes, dementia or stroke.<h4>Met ...[more]

PMID: 30898800

Similar Datasets

Project description:IntroductionOptimal medication management is one of the basic conditions necessary for home-dwelling older adults living with multiple chronic conditions (OAMCC) to be able to remain at home and preserve their quality of life. Currently, the reasons for such high numbers of emergency department visits and the very significant rate of hospitalisations for OAMCC, due to medication-related problems (MRPs), is poorly explored. This study aims to reveal the current state of the medication management practices of polymedicated, home-dwelling OAMCC and to make proposals for improving clinical and medication pathways through an innovative and integrated model for supporting medication management and preventing adverse health outcomes.Methods and analysisA mixed-methods study will address the medication management of polymedicated, home-dwelling OAMCC. Its explanatory sequential design will involve two major phases conducted sequentially over time. The quantitative phase will consist of retrospectively exploiting the last 5 years of electronic patient records from a local hospital (N ≈ 50 000) in order to identify the different profiles-made up of patient-related, medication-related and environment-related factors-of the polymedicated, home-dwelling OAMCC at risk of hospitalisation, emergency department visits, hospital readmission (notably for MRPs), institutionalisation or early death. The qualitative study will involve: (a) obtaining and understanding the medication management practices and experiences of the identified profiles extracted from the hospital data of OAMCC who will be interviewed at home (N ≈ 30); (b) collecting and analysing the perspectives of the formal and informal caregivers involved in medication management at home in order to cross-reference perspectives about this important dimension of care at home. Finally, the mixed-methods findings will enable the development of an innovative, integrated model of medication management based on the Agency for Clinical Innovation framework and Bodenheimer and Sinsky's quadruple aim.Ethics and disseminationEthical approval has been obtained from the Human Research Ethics Committee of the Canton Vaud (2018-02196). Findings will be disseminated in peer-reviewed journals, professional conferences and other knowledge transfer activities with primary healthcare providers, hospital care units, informal caregivers' and patients' associations.

Dataset Information

Experiences of community-dwelling older adults living with multiple chronic conditions: a qualitative study.

Objectives

Design

Setting

Participants

Methods

Results

Conclusions

Publications

Experiences of community-dwelling older adults living with multiple chronic conditions: a qualitative study.

Similar Datasets

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