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The Reference Site Collaborative Network of the European Innovation Partnership on Active and Healthy Ageing.

ABSTRACT: Seventy four Reference Sites of the European Innovation Partnership on Active and Healthy Ageing (EIP on AHA) have been recognised by the European Commission in 2016 for their commitment to excellence in investing and scaling up innovative solutions for active and healthy ageing. The Reference Site Collaborative Network (RSCN) brings together the EIP on AHA Reference Sites awarded by the European Commission, and Candidate Reference Sites into a single forum. The overarching goals are to promote cooperation, share and transfer good practice and solutions in the development and scaling up of health and care strategies, policies and service delivery models, while at the same time supporting the action groups in their work. The RSCN aspires to be recognized by the EU Commission as the principal forum and authority representing all EIP on AHA Reference Sites. The RSCN will contribute to achieve the goals of the EIP on AHA by improving health and care outcomes for citizens across Europe, and the development of sustainable economic growth and the creation of jobs.

SUBMITTER: Bousquet J

PROVIDER: S-EPMC6581486 | biostudies-literature | 2019 Jan-Jun

REPOSITORIES: biostudies-literature

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The Reference Site Collaborative Network of the European Innovation Partnership on Active and Healthy Ageing.

Bousquet J J Illario M M Farrell J J Batey N N Carriazo A M AM Malva J J Hajjam J J Colgan E E Guldemond N N Perälä-Heape M M Onorato G L GL Bedbrook A A Leonardini L L Stroetman V V Birov S S Abreu C C Abrunhosa A A Agrimi A A Alalääkkölä T T Allegretti N N Alonso-Trujillo F F Álvarez-Benito M M Angioli S S Apóstolo J J Armitage G G Arnavielhe S S Baena-ParejoI M M Bamidis P D PD Balenović A A Barbolini M M Baroni I I Blain H H Bernard P L PL Bersani M M Berti E E Bogatyrchuk L L Bourret R R Brehm J J Brussino L L Buhr D D Bultje D D Cabeza E E Cano A A De Capitani C C Carantoña E E Cardoso A A Coll Clavero J I JI Combe B B Conforti D D Coppola L L Corti F F Coscioni E E Costa E E Crooks G G Cunha A A Daien C C Dantas Darpón Sierra J J Davoli M M Dedeu Baraldes A A De Luca V V De Nardi L L Di Ciano M M Dozet A A Ekinci B B Erve S S Espinoza Almendro J M JM Fait A A Fensli R R Fernandez Nocelo S S Gálvez-Daza P P Gámez-Payá J J García Sáez M M Garcia Sanchez I I Gemicioğlu B B Goetzke W W Goossens E E Geurdens M M Gütter Z Z Hansen H H Hartman S S Hegendörfer G G Heikka H H Henderson D D Héran D D Hirvonen S S Iaccarino G G Jansson N N Kallasvaara H H Kalyoncu F F Kirchmayer U U Kokko J A JA Korpelainen J J Kostka T T Kuna P P Lajarín Ortega T T Lama C M CM Laune D D Lauri D D Ledroit V V Levato G G Lewis L L Liotta G G Lundgren L L Lupiañez-Villanueva F F Mc Garry P P Maggio M M Manuel de Keenoy E E Martinez C C Martínez-Domene M M Martínez-Lozano Aranaga B B Massimilliano M M Maurizio A A Mayora O O Melle C C Mendez-Zorilla A A Mengon H H Mercier G G Mercier J J Meyer I I Millet Pi-Figueras A A Mitsias P P Molloy D W DW Monti R R Moro M L ML Muranko H H Nalin M M Nobili A A Noguès M M O'Caoimh R R Pais S S Papini D D Parkkila P P Pattichis C C Pavlickova A A Peiponen A A Pereira S S Pépin J L JL Piera Jiménez J J Portheine P P Potel L L Pozzi A C AC Quiñonez P P Ramirez Lauritsen X X Ramos M J MJ Rännäli-Kontturi A A Risino A A Robalo-Cordeiro C C Rolla G G Roller R R Romano M M Romano V V Ruiz-Fernández J J Saccavini C C Sachinopoulou A A Sánchez Rubio M J MJ Santos L L Scalvini S S Scopetani E E Smedberg D D Solana-Lara R R Sołtysik B B Sorlini M M Stericker S S Stramba Badiale M M Taillieu I I Tervahauta M M Teixeira A A Tikanmäki H H Todo-Bom A A Tooley A A Tuulonen A A Tziraki C C Ussai S S Van der Veen S S Venchiarutti A A Verdoy-Berastegi D D Verissimo M M Visconti L L Vollenbroek-Hutten M M Weinzerl K K Wozniak L L Yorgancıoğlu A A Zavagli V V Zurkuhlen A J AJ

Translational medicine @ UniSa 20190106

Seventy four Reference Sites of the European Innovation Partnership on Active and Healthy Ageing (EIP on AHA) have been recognised by the European Commission in 2016 for their commitment to excellence in investing and scaling up innovative solutions for active and healthy ageing. The Reference Site Collaborative Network (RSCN) brings together the EIP on AHA Reference Sites awarded by the European Commission, and Candidate Reference Sites into a single forum. The overarching goals are to promote ...[more]

PMID: 31360670

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Project description:The European Union and Latin America and the Caribbean regions have enjoyed privileged relations since the first bi-regional Summit of Heads of State and Government, held in Rio de Janeiro, Brazil, in 1999, and the lunching of a Strategic Partnership. Health research stands as one of the major areas of research and development expenditure in both regions and has also been the focus of roughly 30% of all bilateral cooperation agreements and programmes.EU-LAC Health, a project funded by the European Union from 2011 to 2017, had the main objective to develop a consensus roadmap to enhance and coordinate the bi-regional collaboration between the European Union member states and Latin America and Caribbean countries in health research. From April 2013, EU-LAC Health has also supported the Working Group on Health created and designated by decision-makers at the highest political level to implement a bi-regional Join Initiative on Research and Innovation.This article collects and summarises the context, methodology (series of workshops, surveys and iterative deskwork by multiple bi-regional stakeholders) of this project, as well as the main outputs of (1) definition of a strategic roadmap, containing a scientific research agenda, to guide policy-makers in equitable and collaborative health research and innovation; (2) launching of the Joint Initiative on Health Research and Innovation, with the vision of being the reference body on the bi-regional health research and innovation collaboration; and (3) funding of 13 bi-regional health research and innovation projects.EU-LAC Health represents a successful example of bi-regional collaboration and the emerging networks and expertise gathered during the lifetime of the project have the potential to tackle common health challenges affecting the quality of life of citizens from the two regions and beyond. The project has also paved the way for more specific bi-regional initiatives such as a new initiative for bi-regional collaboration in personalised medicine that is being arranged by the partnership. Furthermore, it can inspire future initiatives for bi-regional research collaboration on other fields.

Project description:BACKGROUND:Maternal depression is common among low-income women enrolled in home visiting programs, yet there is considerable variability in the extent to which it is identified and addressed. This study examines outcomes related to postpartum depression screening, receipt of evidence-based services, and reductions in depressive symptoms among clients of home visiting programs in the Health Resources and Services Administration's Maternal, Infant, and Early Childhood Home Visiting Program Home Visiting Collaborative Improvement and Innovation Network (HV CoIIN), the first U.S. national application of the Institute for Healthcare Improvement's Breakthrough Series (BTS) Model in home visiting programs. METHODS AND FINDINGS:Fourteen home visiting programs in eight states, serving a geographically and racially diverse caseload of pregnant women and new mothers, took part in the HV CoIIN. Women in participating home visiting programs received the intervention strategies implemented by their program during participation in the collaborative. HV CoIIN strategies included specific policies and protocols for depression screening and home visitor response to screening results; home visitor training and supervision; delivery of prevention and treatment interventions; and tracking systems for screening, referral, and follow-up. HV CoIIN's proposed primary outcome was that 85% of women who accessed evidence-based services would experience a 25% reduction in depressive symptoms three months after accessing services. Secondary outcomes included an increased percentage of women who were screened for depression within three months of enrollment or birth, who verbally accepted a referral to evidence-based services, and who received one or more evidence-based service contacts. HV CoIIN resulted in improved symptoms among women who accessed services, from 51.1% to 59.9%. HV CoIIN also improved the percent of women screened for depression, from 83.6% to 96.3%, and those with positive depression screens who accessed evidence-based services, from 41.6% to 65.5%. Home visiting programs in this study were early adopters of quality improvement activities, which may limit the generalizability of these results to other home visiting programs. CONCLUSIONS:Home visiting programs can play an important role in closing gaps in maternal depression identification, referrals, service access, and symptom alleviation. Continuous quality improvement and BTS collaborative methods can be used to improve home visiting services in ways that advance national public health priorities and improve population health outcomes.

Project description:BackgroundMetabERN is one of the 24 European Reference Networks created according to the European Union directive 2011/24/EU on patient's rights in cross border healthcare. MetabERN associates 69 centres in 18 countries, which provide care for patients with Hereditary Metabolic Diseases, and have the mission to reinforce research and provide training for health professionals in this field. MetabERN performed a survey in December 2017 with the aim to produce an overview documenting research activities and potentials within the network. As the centres are multidisciplinary, separated questionnaires were sent to the clinical, university and laboratory teams. Answers were received from 52 out of the 69 centres of the network, covering 16 countries. A descriptive analysis of the information collected is presented.ResultsThe answers indicate a marked interest of the respondents for research, who expressed high motivation and commitment, and estimated that the conditions to do research in their institution were mostly satisfactory. They are active in research, which according to several indicators, is competitive and satisfies standards of excellence, as well as the education programs offered in the respondent's universities. Research in the centres is primarily performed in genetics, pathophysiology, and epidemiology, and focuses on issues related to diagnosis. Few respondents declared having activity in human and social sciences, including research on patient's quality of life, patient's awareness, or methods for social support. Infrastructures offering services for medical research were rarely known and used by respondents, including national and international biobanking platforms. In contrast, respondents often participate to patient registries, even beyond their specific field of interest.ConclusionsTaken as a whole, these results provide an encouraging picture of the research capacities and activities in the MetabERN network, which, with respect to the number and representativeness of the investigated centres, gives a comprehensive picture of research on Hereditary Metabolic Diseases in Europe, as well as the priorities for future actions. Marginal activity in human and social sciences points out the limited multidisciplinary constitution of the responding teams with possible consequences on their current capability to participate to patient's empowerment programs and efficiently collaborate with patient's advocacy groups.

Dataset Information

The Reference Site Collaborative Network of the European Innovation Partnership on Active and Healthy Ageing.

Publications

The Reference Site Collaborative Network of the European Innovation Partnership on Active and Healthy Ageing.

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