Dataset Information

Self-efficacy did not predict the outcome of the transition to adult care in adolescents with inflammatory bowel disease.

ABSTRACT:

Aim

It can be difficult for adolescents with inflammatory bowel disease (IBD) to make the transition from paediatric to adult care. We studied the outcomes of this process and defined what constituted a successful transition.

Methods

In 2008, 50 adolescents who attended our IBD transition clinic completed IBD-yourself, a self-efficacy questionnaire that we had previously developed and validated. We approached the subjects in 2014, two to six years after they transferred to adult care, and 35 agreed to take part in the current study. The outcome of transition was assessed by our newly developed Transition Yourself Score. In addition, the relationship between self-efficacy and the outcome of the transition was measured.

Results

The mean age of the patients was 21.8 years, and 69% suffered from Crohn's disease. The transition process was successful in 63% of cases, moderately successful in 31% and failed in 6%. A successful transition was associated with effective use of medication and clinical remission at the time of transfer, but could not be predicted by self-efficacy. The Transition Yourself Score will be validated in future studies.

Conclusion

Nearly two-thirds (63%) of the adolescents who attended the IBD transition clinic had a successful transition to adult care.

SUBMITTER: van den Brink G

PROVIDER: S-EPMC6585705 | biostudies-literature | 2019 Feb

REPOSITORIES: biostudies-literature

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Publications

Self-efficacy did not predict the outcome of the transition to adult care in adolescents with inflammatory bowel disease.

van den Brink Gertrude G van Gaalen Martha A C MAC Zijlstra Marieke M de Ridder Lissy L van der Woude Christine J CJ Escher Johanna C JC

Acta paediatrica (Oslo, Norway : 1992) 20180710 2

<h4>Aim</h4>It can be difficult for adolescents with inflammatory bowel disease (IBD) to make the transition from paediatric to adult care. We studied the outcomes of this process and defined what constituted a successful transition.<h4>Methods</h4>In 2008, 50 adolescents who attended our IBD transition clinic completed IBD-yourself, a self-efficacy questionnaire that we had previously developed and validated. We approached the subjects in 2014, two to six years after they transferred to adult c ...[more]

PMID: 29926962

Similar Datasets

Project description:BACKGROUND:Transfer from pediatric to adult care is a crucial period for adolescents with inflammatory bowel disease (IBD). OBJECTIVE:Our aim was to develop a personalized transition-transfer concept including relevant tools in an established eHealth (electronic health) program. METHODS:Required transition skills and validated patient-reported outcome measures (PROMs) were identified via bibliographic search and clinical experience and were implemented into an existing eHealth program. RESULTS:The following skills were identified: disease knowledge, social life, disease management, and making well-informed, health-related decisions. The PROMs included the following: self-efficacy (the IBD Self-Efficacy Scale-Adolescents), resilience (the 10-item Connor-Davidson Resilience Scale), response to stress (the Child Self-Report Responses to Stress-IBD), and self-management and health care transition skills (the Self-Management and Transition to Adulthood with Treatment questionnaire). Starting at age 14, the patient will be offered a 1-hour annual transition consultation with an IBD-specialized nurse. The consultation will be based on the results of the PROMs and will focus on the patient's difficulties. Patients will complete the PROMs on the eHealth program at home, allowing nurses and patients to prepare for the meeting. Symptom scores and medication will be filled out on the eHealth program to support disease self-management. The consultation will be a topic-centered dialogue with practical exercises. During routine outpatient visits with the provider, parents will be left out of half of the consultation when the patient is 16 years old; at 17 years old, the parents will not be present. At the transfer consultation, the pediatric provider, the adult gastroenterologist, the pediatric nurse, the patient, and the parents will be present to ensure a proper transfer. CONCLUSIONS:We have conducted a personalized eHealth transition concept consisting of basic elements that measure, train, and monitor the patients' transition readiness. The concept can be implemented and adjusted to local conditions.

Dataset Information

Self-efficacy did not predict the outcome of the transition to adult care in adolescents with inflammatory bowel disease.

Aim

Methods

Results

Conclusion

Publications

Self-efficacy did not predict the outcome of the transition to adult care in adolescents with inflammatory bowel disease.

Similar Datasets

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