Dataset Information

A brief, patient- and proxy-reported outcome measure in advanced illness: Validity, reliability and responsiveness of the Integrated Palliative care Outcome Scale (IPOS).

ABSTRACT:

Background

Few measures capture the complex symptoms and concerns of those receiving palliative care.

Aim

To validate the Integrated Palliative care Outcome Scale, a measure underpinned by extensive psychometric development, by evaluating its validity, reliability and responsiveness to change.

Design

Concurrent, cross-cultural validation study of the Integrated Palliative care Outcome Scale - both (1) patient self-report and (2) staff proxy-report versions. We tested construct validity (factor analysis, known-group comparisons, and correlational analysis), reliability (internal consistency, agreement, and test-retest reliability), and responsiveness (through longitudinal evaluation of change).

Setting/participants

In all, 376 adults receiving palliative care, and 161 clinicians, from a range of settings in the United Kingdom and Germany.

Results

We confirm a three-factor structure (Physical Symptoms, Emotional Symptoms and Communication/Practical Issues). Integrated Palliative care Outcome Scale shows strong ability to distinguish between clinically relevant groups; total Integrated Palliative care Outcome Scale and Integrated Palliative care Outcome Scale subscale scores were higher - reflecting more problems - in those patients with 'unstable' or 'deteriorating' versus 'stable' Phase of Illness (F?=?15.1, p?w?>?0.60). Longitudinal validity in form of responsiveness to change is good.

Conclusion

The Integrated Palliative care Outcome Scale is a valid and reliable outcome measure, both in patient self-report and staff proxy-report versions. It can assess and monitor symptoms and concerns in advanced illness, determine the impact of healthcare interventions, and demonstrate quality of care. This represents a major step forward internationally for palliative care outcome measurement.

SUBMITTER: Murtagh FE

PROVIDER: S-EPMC6691591 | biostudies-literature | 2019 Sep

REPOSITORIES: biostudies-literature

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Publications

A brief, patient- and proxy-reported outcome measure in advanced illness: Validity, reliability and responsiveness of the Integrated Palliative care Outcome Scale (IPOS).

Murtagh Fliss Em FE Ramsenthaler Christina C Firth Alice A Groeneveld Esther I EI Lovell Natasha N Simon Steffen T ST Denzel Johannes J Guo Ping P Bernhardt Florian F Schildmann Eva E van Oorschot Birgitt B Hodiamont Farina F Streitwieser Sabine S Higginson Irene J IJ Bausewein Claudia C

Palliative medicine 20190612 8

<h4>Background</h4>Few measures capture the complex symptoms and concerns of those receiving palliative care.<h4>Aim</h4>To validate the Integrated Palliative care Outcome Scale, a measure underpinned by extensive psychometric development, by evaluating its validity, reliability and responsiveness to change.<h4>Design</h4>Concurrent, cross-cultural validation study of the Integrated Palliative care Outcome Scale - both (1) patient self-report and (2) staff proxy-report versions. We tested constr ...[more]

PMID: 31185804

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Dataset Information

A brief, patient- and proxy-reported outcome measure in advanced illness: Validity, reliability and responsiveness of the Integrated Palliative care Outcome Scale (IPOS).

Background

Aim

Design

Setting/participants

Results

Conclusion

Publications

A brief, patient- and proxy-reported outcome measure in advanced illness: Validity, reliability and responsiveness of the Integrated Palliative care Outcome Scale (IPOS).

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