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Stroke patients' and non-professional coaches' experiences with home-based constraint-induced movement therapy: a qualitative study.

ABSTRACT: OBJECTIVE:To investigate the experiences of chronic stroke patients and non-professional coaches with home-based constraint-induced movement therapy (homeCIMT). DESIGN:Qualitative study embedded within a cluster randomized controlled trial investigating the efficacy of homeCIMT to improve the use of the affected arm in daily activities. SETTING:Patients' home environment. PARTICIPANTS:13 stroke patients and 9 non-professional coaches' alias family members who had completed the four-week homeCIMT programme in the context of the HOMECIMT trial. INTERVENTIONS:Semi-structured interviews; qualitative data were analysed using the methodology of the hermeneutic phenomenological data analysis. RESULTS:We identified six themes in the qualitative analysis describing the experiences of patients and non-professional coaches with homeCIMT: (1) homeCIMT can be integrated into everyday life with varying degrees of success; (2) training together may produce positive experiences as well as strain; (3) self-perceived improvements during and following homeCIMT; (4) using the affected arm in everyday life is challenging; (5) subjective evaluation of and experiences with homeCIMT-specific exercises; and (6) impact of professional therapists' guidance and motivation during homeCIMT. Statements regarding theme five and six were only provided by patients, whereas the other themes contain both, the experiences of stroke patients and non-professional coaches. CONCLUSION:Patients' and non-professional coaches' narratives offer a detailed insight into the manifold experiences with the practical implementation of homeCIMT that may help improve implementing the homeCIMT programme and similar approaches involving increased training duration and intensity and/or involvement of family members.

SUBMITTER: Stark A

PROVIDER: S-EPMC6716206 | biostudies-literature | 2019 Sep

REPOSITORIES: biostudies-literature

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Stroke patients' and non-professional coaches' experiences with home-based constraint-induced movement therapy: a qualitative study.

Stark Anne A Färber Christine C Tetzlaff Britta B Scherer Martin M Barzel Anne A

Clinical rehabilitation 20190520 9

<h4>Objective</h4>To investigate the experiences of chronic stroke patients and non-professional coaches with home-based constraint-induced movement therapy (homeCIMT).<h4>Design</h4>Qualitative study embedded within a cluster randomized controlled trial investigating the efficacy of homeCIMT to improve the use of the affected arm in daily activities.<h4>Setting</h4>Patients' home environment.<h4>Participants</h4>13 stroke patients and 9 non-professional coaches' alias family members who had com ...[more]

PMID: 31104476

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Project description:Purpose:To describe the experiences of non-medical discipline staff of difficulties and possibilities in inter-professional communication within the radiology department and remitting departments. Materials and Methods:Three focus group interviews were conducted with 16 non-medical discipline staff in a radiology department at a university hospital in Sweden. Data were analysed using qualitative content analysis. Results:The experiences of inter-professional communication by non-medical discipline staff within the radiology department and with remitting departments can be described in three categories, and six sub categories. The informants experienced difficulties in both oral and written inter-professional communication. Inadequate structures, incorrect information and unclear language in the referral forms, lack of feedback from clinicians and radiologists, and reduced face-to-face communication were described as factors that negatively influenced communication. Other difficulties were time shortage, inadequate routines and economy issues. The possibilities described were use of face-to-face communication, interpreters, and clear and well-structured referral forms. Conclusion:Non-medical staff experience that quality in inter-professional communication has a significant impact on health outcomes and patient safety. They expressed a number of difficulties in both written and oral inter-professional communication. For example inadequate written and oral communication, as well as practical issues such as routine could negatively influence the quality of the outcome of inter-professional communication. Lack of feedback from clinicians and radiologists and reduced face-to-face communication were also mentioned as factors that influence oral communication. Possibilities described to improve inter-professional communication quality and thus patient safety were professional contact on both professional and personal levels, use of interpreters, and clear and well-structured referral forms. The results of this study add to our knowledge of the difficulties and possibilities in non-medical inter-professional communication, which may enhance both safety and health outcomes for patients if implemented. Future studies in interprofessional communication is needed.

Dataset Information

Stroke patients' and non-professional coaches' experiences with home-based constraint-induced movement therapy: a qualitative study.

Publications

Stroke patients' and non-professional coaches' experiences with home-based constraint-induced movement therapy: a qualitative study.

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