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Adolescents' experiences of being diagnosed with attention deficit hyperactivity disorder: a phenomenological study conducted in Sweden.

ABSTRACT: OBJECTIVES:To explore adolescents' experiences of being diagnosed with Attention deficit hyperactivity disorder (ADHD). DESIGN:Qualitative interview study, using a phenomenological framework and analysis. SETTING:The children's clinic of a specialised out-care hospital located in a multicultural area of a Swedish city. PARTICIPANTS:13 adolescents, 7 boys and 6 girls between 14 and 19 years old, who had been diagnosed with ADHD. RESULTS:The participants' experience of being diagnosed with ADHD was interpreted as a process of understanding oneself as being different, for better or worse, like many others. The participants sought acceptance and a sense of normality, while developing an understanding of both the positive and the negative sides of their ADHD traits. These two sides of a coin were inter-related parts of themselves and were shared by many others, which increased their acceptance. Three themes described phases of the process: struggling with vulnerability, responding to a label and manoeuvring social life. CONCLUSION:The results add to previous research, illuminating that the adolescents tried to make sense of both the uniqueness and the vulnerability of the ADHD diagnosis. The findings can be useful for healthcare professionals, in reflecting on the complexity of ADHD and on the adolescents' expectations.

SUBMITTER: Andersson Frondelius I

PROVIDER: S-EPMC6720151 | biostudies-literature | 2019 Aug

REPOSITORIES: biostudies-literature

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Adolescents' experiences of being diagnosed with attention deficit hyperactivity disorder: a phenomenological study conducted in Sweden.

Andersson Frondelius Iwona I Ranjbar Vania V Danielsson Louise L

BMJ open 20190826 8

<h4>Objectives</h4>To explore adolescents' experiences of being diagnosed with Attention deficit hyperactivity disorder (ADHD).<h4>Design</h4>Qualitative interview study, using a phenomenological framework and analysis.<h4>Setting</h4>The children's clinic of a specialised out-care hospital located in a multicultural area of a Swedish city.<h4>Participants</h4>13 adolescents, 7 boys and 6 girls between 14 and 19 years old, who had been diagnosed with ADHD.<h4>Results</h4>The participants' experi ...[more]

PMID: 31455717

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Project description:BackgroundAttention-deficit/hyperactivity disorder (ADHD) is a neurodevelopmental disorder that begins in childhood and often persists into adulthood. ADHD increases the risk of various negative impacts, and pharmacists are well positioned to address these issues in the community.ObjectivesThis survey study aims to first identify pharmacists' ADHD knowledge gaps and experience with ADHD management and to second assess their preferences for continuing education and their experience with sleep-related issues in ADHD.MethodsA survey was sent to Part A Ontario pharmacists with active licenses who opted in to receive research-related emails (n = 6022). Descriptive statistics were used to analyze survey data, while free-form answers were pooled and evaluated for common themes and trends.ResultsA total of 238 complete responses were received. The average self-reported ADHD knowledge was 5.8 ± 1.96 on a 10-point scale. There was no correlation between the number of years of practice as a pharmacist, the number of working hours per week or the location of practice on pharmacists' self-reported knowledge scores. There was a significant difference in self-reported knowledge of ADHD between pharmacists who were not aware of the Canadian ADHD Resource Alliance (CADDRA) guidelines (5.1 ± 2.1) and those who refer to it for standard of care (7.1 ± 1.5). Almost all pharmacists (95%) indicated they could benefit from additional ADHD education, with a strong preference for "online continuing education modules" (81%). The majority of responders considered psychostimulant ADHD medication as the major possible contributor to sleep disturbances (47%) in ADHD, highlighting a need for further education on the inconclusive link between ADHD medication effects on sleep.ConclusionThe study results raise the concern that pharmacists may require additional ADHD education but also show the lack of awareness of available resources, such as the CADDRA guidelines. Can Pharm J (Ott) 2021;154:xx-xx.

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Adolescents' experiences of being diagnosed with attention deficit hyperactivity disorder: a phenomenological study conducted in Sweden.

Publications

Adolescents' experiences of being diagnosed with attention deficit hyperactivity disorder: a phenomenological study conducted in Sweden.

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