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The partner's perspective of the impact of pituitary disease: Looking beyond the patient.


ABSTRACT: People with pituitary disease report impairments in quality of life. The aim of this study was to elucidate the impact of the pituitary condition on the lives of partners. Four focus groups of partners of people with pituitary disease (Cushing's disease, non-functioning adenoma, acromegaly, prolactinoma) were conducted. Partners mentioned worries related to the pituitary disease and negative beliefs about medication, coping challenges, relationship issues, social issues and unmet needs regarding care. This study emphasizes the importance of not only paying attention to psychosocial well-being of people with pituitary disease but also to their partners.

SUBMITTER: Andela CD 

PROVIDER: S-EPMC6749171 | biostudies-literature | 2019 Oct

REPOSITORIES: biostudies-literature

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The partner's perspective of the impact of pituitary disease: Looking beyond the patient.

Andela Cornelie D CD   Tiemensma Jitske J   Kaptein Adrian A AA   Scharloo Margreet M   Pereira Alberto M AM   Kamminga Noëlle Ga NG   Biermasz Nienke R NR  

Journal of health psychology 20170301 12


People with pituitary disease report impairments in quality of life. The aim of this study was to elucidate the impact of the pituitary condition on the lives of partners. Four focus groups of partners of people with pituitary disease (Cushing's disease, non-functioning adenoma, acromegaly, prolactinoma) were conducted. Partners mentioned worries related to the pituitary disease and negative beliefs about medication, coping challenges, relationship issues, social issues and unmet needs regarding  ...[more]

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