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Experience of Identity Change in People Who Reported a Diagnosis of Multiple Sclerosis: A Qualitative Inquiry.


ABSTRACT: Background:A diagnosis of multiple sclerosis (MS) can lead to changes to a person's sense of self. The aim of this study was to investigate the subjective experience of identity change and subsequent adjustment to MS. Methods:Semistructured interviews were conducted with 16 people who reported having MS. Interviews were analyzed using thematic analysis. Results:In the early stages of disease progression, participants wanted to compartmentalize the disease. Over time, through reflected self-appraisals, brought about by increasing symptoms and changed relationships with others, the disease became a part of participants' self-identity. Conclusions:For people with MS, incorporating and accepting the disease as part of their self-identity can have positive implications for seeking and receiving support.

SUBMITTER: Barker AB 

PROVIDER: S-EPMC6819017 | biostudies-literature | 2019 Sep-Oct

REPOSITORIES: biostudies-literature

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Experience of Identity Change in People Who Reported a Diagnosis of Multiple Sclerosis: A Qualitative Inquiry.

Barker Alexander B AB   Smale Kathryn K   Hunt Nigel N   Lincoln Nadina B NB   das Nair Roshan R  

International journal of MS care 20190901 5


<h4>Background</h4>A diagnosis of multiple sclerosis (MS) can lead to changes to a person's sense of self. The aim of this study was to investigate the subjective experience of identity change and subsequent adjustment to MS.<h4>Methods</h4>Semistructured interviews were conducted with 16 people who reported having MS. Interviews were analyzed using thematic analysis.<h4>Results</h4>In the early stages of disease progression, participants wanted to compartmentalize the disease. Over time, throug  ...[more]

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