Ontology highlight
ABSTRACT:
SUBMITTER: Beskow LM
PROVIDER: S-EPMC6824537 | biostudies-literature | 2019 May
REPOSITORIES: biostudies-literature
Beskow Laura M LM Weinfurt Kevin P KP
The American journal of bioethics : AJOB 20190501 5
Data documenting poor understanding among research participants and real-time efforts to assess comprehension in large-scale studies are focusing new attention on informed consent comprehension. Within the context of biobanking consent, we previously convened a multidisciplinary panel to reach consensus about what information must be understood for a prospective participant's consent to be considered valid. Subsequently, we presented them with data from another study showing that many U.S. adult ...[more]