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Qualitative Data Sharing: Data Repositories and Academic Libraries as Key Partners in Addressing Challenges.

ABSTRACT: Data sharing is increasingly perceived to be beneficial to knowledge production, and is therefore increasingly required by federal funding agencies, private funders, and journals. As qualitative researchers are faced with new expectations to share their data, data repositories and academic libraries are working to address the specific challenges of qualitative research data. This paper describes how data repositories and academic libraries can partner with researchers to support three challenges associated with qualitative data sharing: (1) obtaining informed consent from participants for data sharing and scholarly reuse; (2) ensuring that qualitative data are legally and ethically shared; and (3) sharing data that cannot be deidentified. This paper also describes three continuing challenges of qualitative data sharing that data repositories and academic libraries cannot specifically address-research using qualitative big data, copyright concerns, and risk of decontextualization. While data repositories and academic libraries can't provide easy solutions to these three continuing challenges, they can partner with researchers and connect them with other relevant specialists to examine these challenges. Ultimately, this paper suggests that data repositories and academic libraries can help researchers address some of the challenges associated with ethical and lawful qualitative data sharing.

SUBMITTER: Mannheimer S

PROVIDER: S-EPMC6830543 | biostudies-literature | 2019 May

REPOSITORIES: biostudies-literature

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Qualitative Data Sharing: Data Repositories and Academic Libraries as Key Partners in Addressing Challenges.

Mannheimer Sara S Pienta Amy A Kirilova Dessislava D Elman Colin C Wutich Amber A

The American behavioral scientist 20180628 5

Data sharing is increasingly perceived to be beneficial to knowledge production, and is therefore increasingly required by federal funding agencies, private funders, and journals. As qualitative researchers are faced with new expectations to share their data, data repositories and academic libraries are working to address the specific challenges of qualitative research data. This paper describes how data repositories and academic libraries can partner with researchers to support three challenges ...[more]

PMID: 31693016

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Project description:BACKGROUND:Data repositories have the potential to play an important role in the effective and safe sharing of individual-participant data (IPD) from clinical studies. We analysed the current landscape of data repositories to create a detailed description of available repositories and assess their suitability for hosting data from clinical studies, from the perspective of the clinical researcher. METHODS:We assessed repositories that enable storage, sharing, discoverability, re-use of the IPD and associated documents from clinical studies using a pre-defined set of 34 items and publicly available information from April to June 2018. For this purpose, we developed an indicator set to capture the maturity of the repositories' procedures and their suitability for the hosting of IPD. The indicators cover guidelines for data upload and data de-identification, data quality controls, contracts for upload and storage, flexibility of access, application of identifiers, availability of metadata, and long-term preservation. RESULTS:We analysed 25 repositories, from an initial set of 55 identified as possibly relevant. Half of the included repositories were generic, i.e. not limited to a specific disease or clinical area and 13 were launched in the last 8 years. The sample was extremely heterogeneous and included repositories developed by research funders, infrastructures, universities, and editors. All but three repositories do not apply a fee for uploading, storage or access to data. None of the repositories completely demonstrated all the items included in the indicator set, but three repositories (Dryad, Drum, EASY) met - fully or partially - all items. Flexibility of data-access modalities appears to be limited, being lacking in half of the repositories. CONCLUSIONS:Our evaluation, though often hampered by the lack of sufficient information, can help researchers to find a suitable repository for their datasets. Some repositories are more mature because of their support for clinical dataset preparation, contractual agreements, metadata and identifiers, different modalities of access, and long-term preservation of data. Further work is now required to achieve a more robust and accurate system for evaluation, which in turn may encourage the sharing of clinical study data. TRIAL REGISTRATION:Study protocol available at https://zenodo.org/record/1438261#.W64kW9Egrcs .

Project description:BackgroundData Sharing is widely recognised as crucial for accelerating scientific research and improving its quality. However, data sharing is still not a common practice. Funding agencies tend to facilitate the sharing of research data by both providing incentives and requiring data sharing as part of their policies and conditions for awarding grants. The goal of our article is to answer the following question: What challenges do international funding agencies see when it comes to their own efforts to foster and implement data sharing through their policies?MethodsWe conducted a series of sixteen guideline-based expert interviews with representatives of leading international funding agencies. As contact persons for open science at their respective agencies, they offered their perspectives and experiences concerning their organisations' data sharing policies. We performed a qualitative content analysis of the interviews and categorised the challenges perceived by funding agencies.ResultsWe identify and illustrate six challenges surrounding data sharing policies as perceived by leading funding agencies: The design of clear policies, monitoring of compliance, sanctions for non-compliance, incentives, support, and limitations for funders' own capabilities. However, our interviews also show how funders approach potential solutions to overcome these challenges, for example by coordinating with other agencies or adjusting grant evaluation metrics to incentivise data sharing.Discussion and conclusionOur interviews point to existing flaws in funders' data sharing policies, such as a lack of clarity, a lack of monitoring of funded researchers' data sharing behaviour, and a lack of incentives. A number of agencies could suggest potential solutions but often struggle with the overall complexity of data sharing and the implementation of these measures. Funders cannot solve each challenge by themselves, but they can play an active role and lead joint efforts towards a culture of data sharing.

Project description:BackgroundData sharing is commonly seen as beneficial for science but is not yet common practice. Research funding agencies are known to play a key role in promoting data sharing, but German funders' data sharing policies appear to lag behind in international comparison. This study aims to answer the question of how German data sharing experts inside and outside funding agencies perceive and evaluate German funders' data sharing policies and overall efforts to promote data sharing.MethodsThis study is based on sixteen guided expert interviews with representatives of German funders and German research data experts from stakeholder organisations, who shared their perceptions of German' funders efforts to promote data sharing. By applying the method of qualitative content analysis to our interview data, we categorise and describe noteworthy aspects of the German data sharing policy landscape and illustrate our findings with interview passages.ResultsWe present our findings in five sections to distinguish our interviewees' perceptions on a) the status quo of German funders' data sharing policies, b) the role of funders in promoting data sharing, c) current and potential measures by funders to promote data sharing, d) general barriers to those measures, and e) the implementation of more binding data sharing requirements.Discussion and conclusionAlthough funders are perceived to be important promoters and facilitators of data sharing throughout our interviews, only few German funding agencies have data sharing policies in place. Several interviewees stated that funders could do more, for example by providing incentives for data sharing or by introducing more concrete policies. Our interviews suggest the academic freedom of grantees is widely perceived as an obstacle for German funders in introducing mandatory data sharing requirements. However, some interviewees stated that stricter data sharing requirements could be justified if data sharing is a part of good scientific practice.

Dataset Information

Qualitative Data Sharing: Data Repositories and Academic Libraries as Key Partners in Addressing Challenges.

Publications

Qualitative Data Sharing: Data Repositories and Academic Libraries as Key Partners in Addressing Challenges.

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