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Development and content validation of the Multifactoral assessment of perceived social support (MAPSS), a brief, patient-reported measure of social support for use in HIV care.

ABSTRACT: Low perceived social support (SS) negatively impacts health outcomes. We developed a measure of perceived SS for use in HIV care. We sought and categorized legacy items, selecting strongest items within categories. We elicited SS concepts from patients in English/Spanish, coded transcripts to match item pool content, and developed new items for salient unrepresented content. In focus groups, patients prioritized highly-matched items. We conducted cognitive interviews on high-priority items, and validity testing on final items against two legacy measures. From interviews (n?=?32), we matched the following concepts: sense of belonging/inclusion; communication; emotional support; feeling accepted by others as a person; companionship; and practical support. We identified a new concept: support from friends/family in remaining healthy. Focus groups (n?=?23) prioritized emotional support, communication, and support to remain healthy. Cognitive interviews (n?=?30) found items were well-understood. The final 8-item measure performed well with patients (n?=?708), with good construct validity. We used an Item Response Theory program to create a 3-item Short Form version of the measure, which captures 96% of patients indicating low social support. We developed the Multifactoral Assessment of Perceived Social Support (MAPSS) and Short Form (MAPSS-SF); brief, clinically relevant, sufficiently unidimensional measures of SS for use in HIV care.

SUBMITTER: Fredericksen RJ

PROVIDER: S-EPMC6895409 | biostudies-literature | 2019 Jan - Dec

REPOSITORIES: biostudies-literature

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Development and content validation of the Multifactoral assessment of perceived social support (MAPSS), a brief, patient-reported measure of social support for use in HIV care.

Fredericksen Rob J RJ Fitzsimmons Emma E Gibbons Laura E LE Dougherty Sarah S Loo Stephanie S Shurbaji Sally S Batey David S DS Avendano-Soto Sonia S Mathews William C WC Christopoulos Katerina K Mayer Kenneth H KH Mugavero Michael J MJ Crane Paul K PK Crane Heidi M HM

AIDS care 20190101 sup1

Low perceived social support (SS) negatively impacts health outcomes. We developed a measure of perceived SS for use in HIV care. We sought and categorized legacy items, selecting strongest items within categories. We elicited SS concepts from patients in English/Spanish, coded transcripts to match item pool content, and developed new items for salient unrepresented content. In focus groups, patients prioritized highly-matched items. We conducted cognitive interviews on high-priority items, and ...[more]

PMID: 31189333

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Dataset Information

Development and content validation of the Multifactoral assessment of perceived social support (MAPSS), a brief, patient-reported measure of social support for use in HIV care.

Publications

Development and content validation of the Multifactoral assessment of perceived social support (MAPSS), a brief, patient-reported measure of social support for use in HIV care.

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