Ontology highlight
ABSTRACT:
SUBMITTER: Cutter G
PROVIDER: S-EPMC6899582 | biostudies-literature | 2019 Dec
REPOSITORIES: biostudies-literature
Cutter Gary G Xin Haichang H Aban Inmaculada I Burns Ted M TM Allman Phillip H PH Farzaneh-Far Ramin R Duda Petra W PW Kaminski Henry J HJ
Muscle & nerve 20191009 6
<h4>Introduction</h4>The Myasthenia Gravis Patient Registry (MGR) is a voluntary, patient-submitted database dedicated to improve understanding of care/burden of myasthenia gravis (MG).<h4>Methods</h4>In this study we present analyses of baseline records through July 2017 (n = 1140) containing data on the MG-Activities of Daily Living (MG-ADL) and the MG 15-item Quality of Life (MG-QOL15) instruments, two validated scales assessing quality of life in MG patients at sign-up into the MGR.<h4>Resul ...[more]