Dataset Information

Barriers and facilitators for caregiver involvement in the home care of people with pressure injuries: A qualitative study.

ABSTRACT:

Aim

To explore the barriers and facilitators perceived by home caregivers regarding their involvement in the home care of people with pressure injuries.

Background

Although home caregivers are key in the process of caring for people with pressure injuries, little is known about their perceptions regarding their involvement in the same.

Methods

A qualitative study based on grounded theory involving a theoretical sample of 15 home caregivers of people with pressure injuries within the health district of Puertollano, Spain.

Results

This study identified three barriers (feminization of care, necessary life adaptations as a home caregiver, and the organization of health services) and three facilitators (the perceived family duty for caring, willingness to provide care, and satisfaction with the care received on behalf of primary care services) associated with caregiver involvement in the home care of pressure injuries.

Conclusions

The care of a person with pressure injuries is perceived as a duty and requires important adaptations affecting the home caregiver's personal, social and work life. The emotional closeness and trust that develops between a patient and the primary care staff equals an involvement which, in turn, also has positive results for both the home caregiver and the patient.

SUBMITTER: Garcia-Sanchez FJ

PROVIDER: S-EPMC6927621 | biostudies-literature | 2019

REPOSITORIES: biostudies-literature

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Publications

Barriers and facilitators for caregiver involvement in the home care of people with pressure injuries: A qualitative study.

García-Sánchez Francisco José FJ Martínez-Vizcaíno Vicente V Rodríguez-Martín Beatriz B

PloS one 20191223 12

<h4>Aim</h4>To explore the barriers and facilitators perceived by home caregivers regarding their involvement in the home care of people with pressure injuries.<h4>Background</h4>Although home caregivers are key in the process of caring for people with pressure injuries, little is known about their perceptions regarding their involvement in the same.<h4>Methods</h4>A qualitative study based on grounded theory involving a theoretical sample of 15 home caregivers of people with pressure injuries w ...[more]

PMID: 31869363

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Project description:Background: Deficits in quality of care for patients with heart failure (HF) contribute to high mortality in this population. This qualitative study aimed to understand the barriers and facilitators to high-quality HF care in Kerala, India. Methods: Semi-structured, in-depth interviews were conducted with a purposive sample of health care providers (n=13), patients and caregivers (n=14). Additionally, focus group discussions (n=3) were conducted with patients and their caregivers. All interviews and focus group discussions were transcribed verbatim. Textual data were analysed using thematic analysis. Results: Patients' motivation to change their lifestyle behaviours after HF diagnosis and active follow-up calls from health care providers to check on patients' health status were important enablers of high-quality care. Health care providers' advice on substance use often motivated patients to stop smoking and consuming alcohol. Although patients expected support from their family members, the level of caregiver support for patients varied, with some patients receiving strong support from caregivers and others receiving minimal support. Emotional stress and lack of structured care plans for patients hindered patients' self-management of their condition. Further, high patient loads often limited the time health care providers had to provide advice on self-management options. Nevertheless, the availability of experienced nursing staff to support patients improved care within health care facilities. Finally, initiation of guideline-directed medical therapy was perceived as complex by health care providers due to multiple coexisting chronic conditions in HF patients. Conclusions: Structured plans for self-management of HF and more time for patients and health care providers to interact during clinical visits may enable better clinical handover with patients and family members, and thereby improve adherence to self-care options. Quality improvement interventions should also address the stress and emotional concerns of HF patients.

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Dataset Information

Barriers and facilitators for caregiver involvement in the home care of people with pressure injuries: A qualitative study.

Aim

Background

Methods

Results

Conclusions

Publications

Barriers and facilitators for caregiver involvement in the home care of people with pressure injuries: A qualitative study.

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