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Patients and relatives coping with inflammatory arthritis: Care teamwork.


ABSTRACT: OBJECTIVE:To explore how patients and relatives experience and talk together about their life with inflammatory arthritis. DESIGN:Qualitative research. SETTING:A convenience sample was used. Participants were recruited in seven rheumatology departments in France. PARTICIPANTS:Patients with rheumatoid arthritis or spondyloarthritis, agreeing to participate in the study with a relative, age at least 18 years. DATA COLLECTION AND ANALYSIS:Two psychologists conducted face-to-face interviews with 20 patient-relative dyads (40 individuals). A thematic analysis followed a general inductive approach. RESULTS:Saturation was reached after interviews with 20 dyads. The analysis revealed four main themes: (a) disease 'lived' together: a new role for the relative (providing help in physical tasks, emotional support, acting as a driving force, having a role in medical care) and communication around the disease (not focusing on the disease); (b) impact of the disease on the relationship; (c) social impact of the disease on the dyad (social isolation); (d) difficulties and needs of the relative (need to better know the disease). CONCLUSION:This study has highlighted the importance of recognizing the role of the relative in the management of inflammatory arthritis disease, especially when medical decisions are shared with professionals. A joint approach to treatment is a basis for coping with the disease. This approach supposes (a) discussions about relatives' new roles to clarify them, (b) patients' and relatives' communication skills and (c) a good understanding of each other, which can be improved by providing information on the disease and coping strategies for both the patient and the relative.

SUBMITTER: Brignon M 

PROVIDER: S-EPMC6978873 | biostudies-literature | 2020 Feb

REPOSITORIES: biostudies-literature

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Patients and relatives coping with inflammatory arthritis: Care teamwork.

Brignon Morgane M   Vioulac Christel C   Boujut Emilie E   Delannoy Caroline C   Beauvais Catherine C   Kivits Joelle J   Poivret Didier D   Giraudet Le Quintrec Janine-Sophie JS   Untas Aurélie A   Rat Anne-Christine AC  

Health expectations : an international journal of public participation in health care and health policy 20191127 1


<h4>Objective</h4>To explore how patients and relatives experience and talk together about their life with inflammatory arthritis.<h4>Design</h4>Qualitative research.<h4>Setting</h4>A convenience sample was used. Participants were recruited in seven rheumatology departments in France.<h4>Participants</h4>Patients with rheumatoid arthritis or spondyloarthritis, agreeing to participate in the study with a relative, age at least 18 years.<h4>Data collection and analysis</h4>Two psychologists conduc  ...[more]

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