Dataset Information

Towards a European health research and innovation cloud (HRIC).

ABSTRACT: The European Union (EU) initiative on the Digital Transformation of Health and Care (Digicare) aims to provide the conditions necessary for building a secure, flexible, and decentralized digital health infrastructure. Creating a European Health Research and Innovation Cloud (HRIC) within this environment should enable data sharing and analysis for health research across the EU, in compliance with data protection legislation while preserving the full trust of the participants. Such a HRIC should learn from and build on existing data infrastructures, integrate best practices, and focus on the concrete needs of the community in terms of technologies, governance, management, regulation, and ethics requirements. Here, we describe the vision and expected benefits of digital data sharing in health research activities and present a roadmap that fosters the opportunities while answering the challenges of implementing a HRIC. For this, we put forward five specific recommendations and action points to ensure that a European HRIC: i) is built on established standards and guidelines, providing cloud technologies through an open and decentralized infrastructure; ii) is developed and certified to the highest standards of interoperability and data security that can be trusted by all stakeholders; iii) is supported by a robust ethical and legal framework that is compliant with the EU General Data Protection Regulation (GDPR); iv) establishes a proper environment for the training of new generations of data and medical scientists; and v) stimulates research and innovation in transnational collaborations through public and private initiatives and partnerships funded by the EU through Horizon 2020 and Horizon Europe.

SUBMITTER: Aarestrup FM

PROVIDER: S-EPMC7029532 | biostudies-literature | 2020 Feb

REPOSITORIES: biostudies-literature

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Publications

Towards a European health research and innovation cloud (HRIC).

Aarestrup F M FM Albeyatti A A Armitage W J WJ Auffray C C Augello L L Balling R R Benhabiles N N Bertolini G G Bjaalie J G JG Black M M Blomberg N N Bogaert P P Bubak M M Claerhout B B Clarke L L De Meulder B B D'Errico G G Di Meglio A A Forgo N N Gans-Combe C C Gans-Combe C C Gray A E AE Gut I I Gyllenberg A A Hemmrich-Stanisak G G Hjorth L L Ioannidis Y Y Jarmalaite S S Kel A A Kherif F F Korbel J O JO Larue C C Laszlo M M Maas A A Magalhaes L L Manneh-Vangramberen I I Morley-Fletcher E E Ohmann C C Oksvold P P Oxtoby N P NP Perseil I I Pezoulas V V Riess O O Riper H H Roca J J Rosenstiel P P Sabatier P P Sanz F F Tayeb M M Thomassen G G Van Bussel J J Van den Bulcke M M Van Oyen H H

Genome medicine 20200219 1

The European Union (EU) initiative on the Digital Transformation of Health and Care (Digicare) aims to provide the conditions necessary for building a secure, flexible, and decentralized digital health infrastructure. Creating a European Health Research and Innovation Cloud (HRIC) within this environment should enable data sharing and analysis for health research across the EU, in compliance with data protection legislation while preserving the full trust of the participants. Such a HRIC should ...[more]

PMID: 32075696

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Project description:The European Union and Latin America and the Caribbean regions have enjoyed privileged relations since the first bi-regional Summit of Heads of State and Government, held in Rio de Janeiro, Brazil, in 1999, and the lunching of a Strategic Partnership. Health research stands as one of the major areas of research and development expenditure in both regions and has also been the focus of roughly 30% of all bilateral cooperation agreements and programmes.EU-LAC Health, a project funded by the European Union from 2011 to 2017, had the main objective to develop a consensus roadmap to enhance and coordinate the bi-regional collaboration between the European Union member states and Latin America and Caribbean countries in health research. From April 2013, EU-LAC Health has also supported the Working Group on Health created and designated by decision-makers at the highest political level to implement a bi-regional Join Initiative on Research and Innovation.This article collects and summarises the context, methodology (series of workshops, surveys and iterative deskwork by multiple bi-regional stakeholders) of this project, as well as the main outputs of (1) definition of a strategic roadmap, containing a scientific research agenda, to guide policy-makers in equitable and collaborative health research and innovation; (2) launching of the Joint Initiative on Health Research and Innovation, with the vision of being the reference body on the bi-regional health research and innovation collaboration; and (3) funding of 13 bi-regional health research and innovation projects.EU-LAC Health represents a successful example of bi-regional collaboration and the emerging networks and expertise gathered during the lifetime of the project have the potential to tackle common health challenges affecting the quality of life of citizens from the two regions and beyond. The project has also paved the way for more specific bi-regional initiatives such as a new initiative for bi-regional collaboration in personalised medicine that is being arranged by the partnership. Furthermore, it can inspire future initiatives for bi-regional research collaboration on other fields.

Dataset Information

Towards a European health research and innovation cloud (HRIC).

Publications

Towards a European health research and innovation cloud (HRIC).

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