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Systematic collection of patient-reported outcomes in atrial fibrillation: feasibility and initial results of the Utah mEVAL AF programme.


ABSTRACT: AIMS:Incorporating patient-reported outcomes (PROs) into routine care of atrial fibrillation (AF) enables direct integration of symptoms, function, and health-related quality of life (HRQoL) into practice. We report our initial experience with a system-wide PRO initiative among AF patients. METHODS AND RESULTS:All patients with AF in our practice undergo PRO assessment with the Toronto AF Severity Scale (AFSS), and generic PROs, prior to electrophysiology clinic visits. We describe the implementation, feasibility, and results of clinic-based, electronic AF PRO collection, and compare AF-specific and generic HRQoL assessments. From October 2016 to February 2019, 1586 unique AF patients initiated 2379 PRO assessments, 2145 of which had all PRO measures completed (90%). The median completion time for all PRO measures per visit was 7.3?min (1st, 3rd quartiles: 6, 10). Overall, 38% of patients were female (n?=?589), mean age was 68 (SD 12) years, and mean CHA2DS2-VASc score was 3.8 (SD 2.0). The mean AFSS symptom score was 8.6 (SD 6.6, 1st, 3rd quartiles: 3, 13), and the full range of values was observed (0, 35). Generic PROs of physical function, general health, and depression were impacted at the most severe quartiles of AF symptom score (P?

SUBMITTER: Steinberg BA 

PROVIDER: S-EPMC7058971 | biostudies-literature | 2020 Mar

REPOSITORIES: biostudies-literature

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Systematic collection of patient-reported outcomes in atrial fibrillation: feasibility and initial results of the Utah mEVAL AF programme.

Steinberg Benjamin A BA   Turner Jeffrey J   Lyons Ann A   Biber Joshua J   Chelu Mihail G MG   Fang James C JC   Freedman Roger A RA   Han Frederick T FT   Hardisty Benjamin B   Marrouche Nassir F NF   Ranjan Ravi R   Shah Rashmee U RU   Spertus John A JA   Stehlik Josef J   Zenger Brian B   Piccini Jonathan P JP   Hess Rachel R  

Europace : European pacing, arrhythmias, and cardiac electrophysiology : journal of the working groups on cardiac pacing, arrhythmias, and cardiac cellular electrophysiology of the European Society of Cardiology 20200301 3


<h4>Aims</h4>Incorporating patient-reported outcomes (PROs) into routine care of atrial fibrillation (AF) enables direct integration of symptoms, function, and health-related quality of life (HRQoL) into practice. We report our initial experience with a system-wide PRO initiative among AF patients.<h4>Methods and results</h4>All patients with AF in our practice undergo PRO assessment with the Toronto AF Severity Scale (AFSS), and generic PROs, prior to electrophysiology clinic visits. We describ  ...[more]

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