Framework for Patient and Informal Caregiver Participation in Research (PAICPAIR): Part 1.
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ABSTRACT:
SUBMITTER: Staats K
PROVIDER: S-EPMC7192540 | biostudies-literature | 2020 Apr/Jun
REPOSITORIES: biostudies-literature
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Framework for Patient and Informal Caregiver Participation in Research (PAICPAIR): Part 1.
Staats Katrine K Grov Ellen Karine EK Husebø Bettina B Tranvåg Oscar O
ANS. Advances in nursing science 20200401 2
The term user involvement is frequently applied in research. Frameworks for patient and informal caregiver participation as coresearchers in studies concerning patients with life-threatening illness are however sparse. The PhD project Dying With Dignity-Dignity-Preserving Care for Older Women Living at Home With Incurable Cancer has implemented a thorough cooperation with patients and informal caregivers from the early stages of the research process. A framework for Patient and Informal Caregive ...[more]
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