Comparison of an Online-Only Parkinson's Disease Research Cohort to Cohorts Assessed In Person.

ABSTRACT:

Background

Online tools for data collection could be of value in patient-oriented research. The Fox Insight (FI) study collects data online from individuals with self-reported Parkinson's disease (PD). Comparing the FI cohort to other cohorts assessed through more traditional (in-person) observational research studies would inform the representativeness and utility of FI data.

Objective

To compare self-reported demographic characteristics, symptoms, medical history, and PD medication use of the FI PD cohort to other recent observational research study cohorts assessed with in-person visits.

Methods

The FI PD cohort (n = 12,654) was compared to 3 other cohorts, selected based on data accessibility and breadth of assessments: Parkinson's Progression Markers Initiative (

SUBMITTER: Chahine LM 

PROVIDER: S-EPMC7242834 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature