Ontology highlight
ABSTRACT:
SUBMITTER: White KK
PROVIDER: S-EPMC7313125 | biostudies-literature | 2020 Jun
REPOSITORIES: biostudies-literature
White Klane K KK Bober Michael B MB Cho Tae-Joon TJ Goldberg Michael J MJ Hoover-Fong Julie J Irving Melita M Kamps Shawn E SE Mackenzie William G WG Raggio Cathleen C Spencer Samantha A SA Bompadre Viviana V Savarirayan Ravi R
Orphanet journal of rare diseases 20200624 1
<h4>Background</h4>Disorders of the spine present a common and difficult management concern in patients with skeletal dysplasia. Due to the rarity of these conditions however, the literature, largely consisting of small, single institution case series, is sparse in regard to well-designed studies to support clinical decision making in these situations.<h4>Methods</h4>Using the Delphi method, an international, multi-disciplinary group of individuals, with significant experience in the care of pat ...[more]